How do I know if I have Bladder Exstrophy?

How to Determine if You Have Bladder Exstrophy

Bladder exstrophy is a rare congenital condition where the bladder is located outside the body. It occurs due to a developmental abnormality during fetal development. If you suspect you may have bladder exstrophy, it is important to consult with a healthcare professional for a proper diagnosis. However, there are several signs and symptoms that may indicate the presence of this condition:

Visible Physical Abnormalities

One of the most noticeable signs of bladder exstrophy is the physical appearance of the lower abdominal area. Individuals with this condition may have a visible defect in the lower abdominal wall, with the bladder exposed and protruding outside the body. The appearance may vary in severity, ranging from a small opening to a larger, more pronounced defect.

Urinary Issues

Bladder exstrophy can also lead to various urinary problems. These may include difficulty controlling urine flow, frequent urinary tract infections, and urinary incontinence. Additionally, individuals with this condition may experience urinary reflux, where urine flows back into the kidneys instead of being expelled from the body.

Genital Abnormalities

Bladder exstrophy can affect the genital area as well. In males, the penis may be short and curved, and the testicles may not descend properly. In females, the clitoris may be enlarged and separated, and the labia may be divided.

Other Associated Conditions

Bladder exstrophy is often accompanied by other related conditions. These may include abnormalities in the pelvic bones, such as a widened pubic bone or hip dysplasia. Additionally, individuals with bladder exstrophy may have gastrointestinal issues, such as an abnormal connection between the bladder and intestines.

If you suspect you may have bladder exstrophy based on these signs and symptoms, it is crucial to seek medical evaluation. A healthcare professional, such as a urologist or pediatric surgeon, can perform a thorough examination and order diagnostic tests to confirm the diagnosis. These may include imaging studies, such as ultrasound or MRI, to assess the bladder and surrounding structures.

Early diagnosis and intervention are essential in managing bladder exstrophy. Treatment typically involves surgical repair to reposition the bladder inside the body and reconstruct the affected organs. Long-term follow-up care is necessary to monitor urinary function and address any associated complications.