20

What are the latest advances in Bladder Exstrophy?

Here you can see the latest advances and discoveries made regarding Bladder Exstrophy.

Latest progress of Bladder Exstrophy

Bladder exstrophy is a rare congenital condition where the bladder is located outside the body. It occurs due to a developmental defect during early pregnancy, resulting in the incomplete closure of the abdominal wall and urinary tract. This condition requires surgical intervention shortly after birth to reconstruct the bladder and abdominal wall.



Over the years, there have been significant advances in the treatment and management of bladder exstrophy, aimed at improving outcomes and quality of life for affected individuals. Some of the latest advances include:



1. Surgical Techniques: Surgeons have refined the techniques used in bladder exstrophy repair to achieve better functional and cosmetic outcomes. The goal is to create a functional bladder with continence and preserve normal sexual function. Advanced surgical techniques, such as the modified Cantwell-Ransley procedure, have shown promising results in achieving these goals.



2. Minimally Invasive Surgery: Minimally invasive surgical approaches, such as laparoscopy and robotic-assisted surgery, have been increasingly used in bladder exstrophy repair. These techniques offer several advantages, including smaller incisions, reduced blood loss, faster recovery, and improved cosmetic outcomes. Minimally invasive surgery is particularly beneficial for infants and young children, as it minimizes the impact on their growing bodies.



3. Tissue Engineering: Researchers are exploring the use of tissue engineering to improve bladder function and promote regeneration. This involves creating artificial bladder tissues using a combination of biocompatible materials and the patient's own cells. Tissue-engineered bladders have shown promising results in animal studies and early clinical trials, offering hope for a more functional and durable bladder reconstruction in the future.



4. Multidisciplinary Care: Bladder exstrophy management requires a multidisciplinary approach involving urologists, plastic surgeons, orthopedic surgeons, and other specialists. The coordination of care among different specialties has improved over time, leading to better treatment planning and outcomes. Multidisciplinary teams work together to address the complex physical, psychological, and social aspects of bladder exstrophy, ensuring comprehensive and holistic care for patients.



5. Psychosocial Support: Recognizing the impact of bladder exstrophy on psychosocial well-being, there has been an increased focus on providing psychosocial support to patients and their families. Support groups, counseling services, and educational resources are available to help individuals cope with the challenges associated with bladder exstrophy. This holistic approach aims to improve overall quality of life and mental health outcomes.



6. Long-term Follow-up: Long-term follow-up care is crucial for individuals with bladder exstrophy to monitor their bladder function, address any complications, and provide ongoing support. Regular check-ups, imaging studies, and urodynamic evaluations help identify and manage potential issues early on, ensuring optimal long-term outcomes.



In conclusion, the field of bladder exstrophy has witnessed significant advancements in surgical techniques, minimally invasive approaches, tissue engineering, multidisciplinary care, psychosocial support, and long-term follow-up. These advances hold great promise for improving the lives of individuals with bladder exstrophy, enhancing bladder function, and optimizing overall quality of life.


Diseasemaps
3 answers
Gli ultimi updates riguardano materiale per aiutare nell'incontinenza urinaria e nel poter creare nuove tipi di "plastiche ricostruttive".
SI è inoltre evinto come le ripercussioni psicologiche dovute ai numerosi ricoveri e trattamenti e la sfera della sessualità sono due aspetti fondamentali da curare per permettere all'individuo di crescere in salute.

Posted Oct 13, 2017 by Giovanni 3050
Translated from spanish Improve translation
q I have understood the last progress is to make the reconstruction of the bladder and the sphincter or to put an artificial sphincter in the first months of life

Posted Jul 13, 2017 by Lorena 1850

Latest progress of Bladder Exstrophy

Bladder Exstrophy life expectancy

What is the life expectancy of someone with Bladder Exstrophy?

4 answers
Celebrities with Bladder Exstrophy

Celebrities with Bladder Exstrophy

1 answer
Is Bladder Exstrophy hereditary?

Is Bladder Exstrophy hereditary?

4 answers
Is Bladder Exstrophy contagious?

Is Bladder Exstrophy contagious?

4 answers
Natural treatment of Bladder Exstrophy

Is there any natural treatment for Bladder Exstrophy?

3 answers
ICD9 and ICD10 codes of Bladder Exstrophy

ICD10 code of Bladder Exstrophy and ICD9 code

3 answers
Living with Bladder Exstrophy

Living with Bladder Exstrophy. How to live with Bladder Exstrophy?

3 answers
Bladder Exstrophy diet

Bladder Exstrophy diet. Is there a diet which improves the quality of life ...

3 answers

World map of Bladder Exstrophy

Find people with Bladder Exstrophy through the map. Connect with them and share experiences. Join the Bladder Exstrophy community.

Stories of Bladder Exstrophy

BLADDER EXSTROPHY STORIES
Bladder Exstrophy stories
Hi all, I'm Tijo from India. Born with BE. Undergone 13 surgeries. Now I'm using caths for draining. I regularly wash my bladder. Some issues are there with my left kidney. But I feel better now.
Bladder Exstrophy stories
Jayse was born in September of 2011! He was our first born at a young age! Doctors didn't know what was going on when he was delivered. They had never seen anything like that before. Then we were sent to MUSC and the doctors their knew what to do and...

Tell your story and help others

Tell my story

Bladder Exstrophy forum

BLADDER EXSTROPHY FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map