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What are the latest advances in Carney Complex?

Here you can see the latest advances and discoveries made regarding Carney Complex.

Latest progress of Carney Complex
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There is a Carney Complex research programme at the NIH in Bethesda, USA. This is run by Dr Stratakis. The research team have now found over 120 frameshift mutations associated with CNC. If you have Carney Complex you may join this and enable the team to learn more about both the genetic side of Carney Complex and the physical conditions associated with it.
It is now possible to have PGD IVF. Pre Genetic Diagnosis IVF - embryo’s can be genetically tested. This means patients can have healthy children who will not have or carry the Carney Complex gene.
Posted May 27, 2019 by Angela 2510

Latest progress of Carney Complex

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Stories of Carney Complex

CARNEY COMPLEX STORIES
Carney Complex stories
CARNEY COMPLEX 17Q24.2 - 17Q24.3 DELETION
I am writing in behalf of my daughter, 9 years at this time, who was diagnosed with Carney Complex.  At this age she has probable adrenal tumors because of her high cortisol.  She also has two small myxomas on her face.  She has lentignes on the w...
Carney Complex stories
MY CONDITION IS MAINLY CARNEY COMPLEX.
I took Carney Complex at the age of 16, in 1995. I found out through my first serious boyfriend as felt lumps which were cysts in my breasts unknown to me. At that age breast cancer was unspoken and I being very young was unknown too breast cancer no...
Carney Complex stories
CARNEY COMPLEX
I have many freckles Severe headaches when exercising started 2017. Days play tennis. Headaches worsened until I couldn’t finish matches. Eventually Brain MRI revealed large pituitary tumor 3cmx4cm. Tumor was an adenoma prolactinoma. Cabergolin...

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