i got sick March 7 of 2015. My lung collapsed while I was teacher my first grade students. I truly thought I was having a heart attack. The scariest thing about having this rare disease is that so few have experience with it and basically fumble through treatment. Then after I was treated and released my lung collapsed again in the same week in front of my students again. My poor kids had to see me carried out on a stretcher twice. No one really knows what the best course of treatment is and it really scares me when I get sick. I've gone 12 months with only having pleurisy and no more collapses. If my story can help someone then I will feel better.