Help us to help more people
  2. Cavernous Malformation
  3. Advice
Rest, and meditation.
by Bobbie Sue
Finding community in others who have gone through the experience of having a Cavernoma
by Canuck36
Pursuing brainstem surgery for the cav mal that was continuously bleeding.
by Crystal
art
by Jana
Fioricet
by Emily
Took up tai chi for healing
by Rsewald
Balance therapy
by Shawna
Staying active has helped. If I stay busy I think about my symptoms less
by Shannon
My kids give strength to fight.
by Emma
I knit to reduce stress
by Anja
CCM2 with Deletion
by Cynthia
I keep stress to a minimum. More stress = more issues.
by Dawn
Tai Chi
by Beatrice
Yoga. Makes all the difference with both physical and emotional well being.
by lkblake
Dr. Gary Retacop Vancouver
by Kerilee Sheppard
Duloxetina
by Laura
Ice packs
by Bobbie Sue
Not being afraid to ask questions of my doctors and getting a second opinion or a third, etc
by Canuck36
Continuing physical therapy after surgery, and even reevaluating the need to continue it again years later to rebuild muscles.
by Crystal
meditation
by Jana
Hydrocondone
by Emily
Sleep more and don't feel guilty about it
by Rsewald
Physical therapy
by Shawna
The
by Shannon
My family pulled me out of the dark times
by Emma
My family's care
by Anja
12 total at this time
by Cynthia
Having someone close to me that's not judgemental. Someone to lean on when necessary.
by Dawn
Meditation
by Beatrice
Less alcohol. Simple and obvious.
by lkblake
Misdiagnosed on first bleed.
by Kerilee Sheppard
Salir a la montaña
by Laura
Therapy to process what the experience was like to live through
by Canuck36
A positive attitude and a warrior spirit.
by Crystal
eating spicy chili peppers
by Jana
Oxycontin
by Emily
Ask for help
by Rsewald
Exercise
by Shawna
Time
by Emma
I learned to deal with my anxieties over the years
by Anja
Was told I had brain cancer and I said I want second opinion at Iowa City Hospital ...then after alot of test and a final look they finally saw the rasberry lessions in my MRI.I was told I had CCMs
by Cynthia
Laughter. Great distraction from stress.
by Dawn
Healthy diet
by Beatrice
Losing weight. Carrying less around means less stress on my neuro system.
by lkblake
Happy to be here as the new me.
by Kerilee Sheppard
Ser muy positiva
by Laura