Story about Cavernous Malformation .

35 weeks pregnant CCM bleed in brain stem

Jun 14, 2017


I was 35 weeks pregnant and admitted to the birth unit with a headache.  I was given iv fluid and had some bloods taken.  Over the next 48 hours I started to vomit constantly.  Developed double vision.  Lost all pain sensation or hot/cold sensation down left side of body.    Became weak lost strength and sensation down right side of my body.   Had difficulty swallowing. Developed a right side facial droop.  Extreme vertigo and dizziness   

An MRI showed a CCM with an active bleed in my brain stem or medulla to be Exact. 

The decision was made to get my bub out via c-section under spinal an anaesthetic.   Healthy boy! 

I was commenced on IV dexamethasone and put into ICU. For 5 nights.  

My blood pressure became elevated and was managed with inotropes and then oral labitolol.   

 

Inspent the next 3 weeks in hospital learning to walk again to be strong enough to take my baby home and be with other two kids also.  

7 months in I still have some weakness in. My arm but otherwise I am pretty lucky.   Watching and waiting.   Not operating unless I have another bleed.   

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Cavernous Malformation life expectancy

What is the life expectancy of someone with Cavernous Malformation?

Natural treatment of Cavernous Malformation

Is there any natural treatment for Cavernous Malformation?

Cavernous Malformation prognosis

Cavernous Malformation prognosis

Cavernous Malformation jobs

Can people with Cavernous Malformation work? What kind of work can the...

Cavernous Malformation cure

Does Cavernous Malformation have a cure?

Do I have Cavernous Malformation?

How do I know if I have Cavernous Malformation?

Cavernous Malformation treatments

What are the best treatments for Cavernous Malformation?

Cavernous Malformation diagnosis

How is Cavernous Malformation diagnosed?