There are 66 people in the CDKL5 map

CDKL5 life expectancy

What is the life expectancy of someone with CDKL5?

1 answer
Is CDKL5 contagious?

Is CDKL5 contagious?

3 answers
ICD9 and ICD10 codes of CDKL5

ICD10 code of CDKL5 and ICD9 code

1 answer
Is CDKL5 hereditary?

Is CDKL5 hereditary?

2 answers

Stories of CDKL5

STORY
CDKL5 stories
I am Kiley's mom Tina. Kiley was born in June of 06. In December of 06, she received a diagnosis of infantile spasms, etiology unknown. We went thriugh Acth, keppra, klonopin, depakote, vigabitrin, sabril, ketogenic diet and nothing controlled the se...
CDKL5 stories
My great granddaughter, Eaysa Rae, has CDKL5.  She is so beautiful and I want to find out as much as I can to help her and our family understand what we can do to help her enjoy her life and be happy. She has a great supportive family and her da...
CDKL5 stories
My name is Harper Elle Howard, but you can call me Harperpotamus.  Although my experience was only 5 years long, my story lives on through the millions of people who suffer from epilepsy, recurrent seizures, and the rare disorder, CDKL5.    &...

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CDKL5 forum

QUESTION

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Statistics of CDKL5

1 people with CDKL5 have taken the SF36 survey. Mean of CDKL5 is 1165 points (32 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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CDKL5