Celebrities with CDKL5

CDKL5 is a rare genetic disorder that primarily affects the nervous system, causing severe developmental delays and various neurological problems. While it is not widely known, there are a few celebrities who have openly discussed their personal experiences with CDKL5, either as individuals living with the condition or as parents of children diagnosed with it.

One notable celebrity who has been vocal about CDKL5 is Warren D. Bryant, the former CEO of Long & Foster Companies. Bryant's daughter, Charlotte, was diagnosed with CDKL5 at a young age. He has used his platform to raise awareness about the disorder and advocate for research funding. Bryant has spoken at various conferences and events, sharing his family's journey and emphasizing the importance of early diagnosis and intervention.

Another well-known figure who has a personal connection to CDKL5 is Alison Sweeney, an actress and television host. Sweeney's niece, Megan, was diagnosed with CDKL5 as an infant. Sweeney has actively supported organizations dedicated to CDKL5 research and has participated in fundraising campaigns to help find a cure. She has also used her social media presence to raise awareness and educate her followers about the challenges faced by individuals with CDKL5 and their families.

Dravet Syndrome Foundation is a non-profit organization that focuses on supporting individuals and families affected by CDKL5 and related disorders. While not a celebrity in the traditional sense, the foundation has garnered attention and support from various public figures. Their efforts to raise awareness and funds for research have been endorsed by celebrities such as John Legend, Chrissy Teigen, and Kim Kardashian West. These influential figures have used their platforms to promote the foundation's initiatives and encourage their followers to get involved.

It is important to note that CDKL5 is a relatively rare disorder, and many individuals and families affected by it may not have public profiles or be widely recognized. However, the dedication of these celebrities and their involvement in raising awareness about CDKL5 has undoubtedly helped shed light on the condition and its impact on individuals and families.