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Living with CDKL5. How to live with CDKL5?

Can you be happy living with CDKL5? What do you have to do to be happy with CDKL5? Living with CDKL5 can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with CDKL5

Living with CDKL5
1 answer
I feel my daughter has no quality of life she is not really awarenofnherbsurroundinfs

Posted May 23, 2017 by Beth Ann 2120

Living with CDKL5

CDKL5 life expectancy

What is the life expectancy of someone with CDKL5?

1 answer
Is CDKL5 contagious?

Is CDKL5 contagious?

3 answers
Celebrities with CDKL5

Celebrities with CDKL5

Is CDKL5 hereditary?

Is CDKL5 hereditary?

2 answers
ICD9 and ICD10 codes of CDKL5

ICD10 code of CDKL5 and ICD9 code

1 answer
Natural treatment of CDKL5

Is there any natural treatment for CDKL5?

1 answer
CDKL5 symptoms

Which are the symptoms of CDKL5?

3 answers
History of CDKL5

What is the history of CDKL5?

1 answer

World map of CDKL5

Find people with CDKL5 through the map. Connect with them and share experiences. Join the CDKL5 community.

Stories of CDKL5

CDKL5 STORIES
CDKL5 stories
I am Kiley's mom Tina. Kiley was born in June of 06. In December of 06, she received a diagnosis of infantile spasms, etiology unknown. We went thriugh Acth, keppra, klonopin, depakote, vigabitrin, sabril, ketogenic diet and nothing controlled the se...
CDKL5 stories
My great granddaughter, Eaysa Rae, has CDKL5.  She is so beautiful and I want to find out as much as I can to help her and our family understand what we can do to help her enjoy her life and be happy. She has a great supportive family and her daddy ...
CDKL5 stories
My name is Harper Elle Howard, but you can call me Harperpotamus.  Although my experience was only 5 years long, my story lives on through the millions of people who suffer from epilepsy, recurrent seizures, and the rare disorder, CDKL5.     If ...

Tell your story and help others

Tell my story

CDKL5 forum

CDKL5 FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map