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Celebrities with Central Core Disease

What famous people have Central Core Disease? Find out which celebrities, athletes or public figures have Central Core Disease.

Celebrities with Central Core Disease


Central Core Disease (CCD) is a rare genetic disorder that primarily affects the skeletal muscles. It is characterized by muscle weakness, particularly in the hips, thighs, and shoulders. CCD is caused by mutations in the RYR1 gene, which is responsible for producing a protein involved in muscle contraction. As a result, individuals with CCD may experience difficulties with mobility, muscle coordination, and overall muscle strength.



While CCD is a relatively uncommon condition, there have been a few celebrities who have openly discussed their experiences with the disease. These individuals have used their platforms to raise awareness about CCD and inspire others facing similar challenges. Let's take a look at some of these notable figures:



1. Gaten Matarazzo



Gaten Matarazzo is an American actor best known for his role as Dustin Henderson in the hit Netflix series "Stranger Things." In addition to his acting talents, Matarazzo has been open about his personal journey with CCD. He has spoken about how the condition has affected his life and career, highlighting the importance of inclusivity and representation for individuals with disabilities in the entertainment industry.



2. Mia Fizz



Mia Fizz, also known as Mia Fizz or Mia Fizz, is a popular British YouTuber and social media influencer. She gained prominence through her family's YouTube channel, "The Fizz Family," which documents their daily lives. Mia has bravely shared her experience living with CCD, raising awareness about the condition and promoting acceptance and understanding.



3. Jacob Velazquez



Jacob Velazquez is a talented young pianist and composer who has gained recognition for his musical abilities. Despite living with CCD, Jacob has not let the condition hinder his passion for music. He has performed on various platforms, including "The Ellen DeGeneres Show," where he showcased his incredible talent and resilience. Jacob's story serves as an inspiration to many, proving that determination and talent can overcome any obstacle.



4. Kayla Cromer



Kayla Cromer is an American actress known for her role as Matilda in the television series "Everything's Gonna Be Okay." She has been vocal about her journey with CCD and the challenges she has faced as an actress with a disability. Kayla's advocacy work has shed light on the importance of representation and equal opportunities for individuals with disabilities in the entertainment industry.



These celebrities have not only achieved success in their respective fields but have also used their platforms to raise awareness about Central Core Disease. Their openness and determination serve as a source of inspiration for others facing similar challenges. By sharing their stories, they contribute to a more inclusive and understanding society, where individuals with disabilities are celebrated for their talents and abilities.


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Stories of Central Core Disease

CENTRAL CORE DISEASE STORIES
Central Core Disease stories
As a small child I became aware that I was not able to run like all my friends or climb trees and do all the other things all other boys did. I have two older brothers and a twin sister they are like me but gowing up this was never spoken about, in o...
Central Core Disease stories
Desde criança sofri muito com a minha doença, pois não sabia o que realmente eu tinha. Não entendia o porque que eu não conseguia correr, pular, agachar e levantar normalmente como as demais crianças. Os anos foram se passando e eu sem entender...
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My son was born floppy and muscle biopsies confirmed congenital MD. Recent blood genetics result now say RYR1 Mutation and Central core disease is back on the table as it was in the beginning. I believed until a week ago that Chris disease and my sy...
Central Core Disease stories
I grew up in Crewe, UK. I have always been aware that there was something different about me. I went to a special needs school in a nearby town called Winsford where I got the care I needed but I was not able to walk until I was 5. Once my Mum re...

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