A Central Pain Syndrome interview , Chronic Fatigue Syndrome / M.E..

Stephanie's interview


How did all start?

Normal authropscopic knee surgery Went un diagnosed for years

Do you already have a diagnosis? How long did it take you to get it?

It took 6 years

For what medical specialties have you been treated? What has been the most useful specialty for your?

CRPS and Chiari Malformation , sadly nothing has worked as I am not a canadaite for any surgeries as I also build scar tissue faster then the normal person and as far as the brain surgery the chances of even making it through were only 30%

What has been the most useful thing for you so far?

Nothing

What have been your biggest difficulties?

Learning to deal with the terms I can no longer do many things I’ve been doing my whole life and having to rely on someone to help me do basic daily thongs

How has your social and family environment reacted? Have your social or family relationships changed?

Everything has changed. I go no where nor see anyone any longer

What things have you stopped doing?

Walking working reading sleeping eating really everything

What do you think about the future?

When will it end as there is none for me

So far, which years have been the best years in your life? What have you done during them?

Before getting sick and hurt and being with my children watching them grown into amazing adults

What would you like to do if you didn’t have your condition?

Work again

If you had to describe your life in a sentence, what would it be?

It’s over

Finally, what advice would you give to a person in a similar situation?

I am not the one to ask

Interview Central Pain Syndrome

Nov 11, 2017

By: Stephanie

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