8

Which advice would you give to someone who has just been diagnosed with Cerebral Palsy?

See some advice from people with experience in Cerebral Palsy to people who have just been diagnosed with Cerebral Palsy

Cerebral Palsy advice

Advice for Someone Newly Diagnosed with Cerebral Palsy


Receiving a diagnosis of cerebral palsy (CP) can be overwhelming and bring about a range of emotions. It is important to remember that you are not alone in this journey. While each person's experience with CP is unique, there are some general pieces of advice that can help you navigate this new chapter in your life.



1. Educate Yourself:


Take the time to learn about cerebral palsy, its causes, symptoms, and available treatments. Understanding your condition will empower you to make informed decisions about your healthcare and lifestyle. Consult reputable sources, such as medical professionals, support groups, and reliable websites, to gather accurate information.



2. Build a Support Network:


Surround yourself with a strong support system that includes family, friends, and healthcare professionals who specialize in CP. They can provide emotional support, guidance, and practical assistance when needed. Joining support groups or connecting with individuals who have CP can also be beneficial, as they can share their experiences and offer valuable advice.



3. Seek Specialized Medical Care:


Consult with a healthcare professional who specializes in cerebral palsy. They will assess your specific needs and develop a personalized treatment plan. This may involve physical therapy, occupational therapy, medications, assistive devices, or surgeries. Regular check-ups and open communication with your healthcare team are crucial for managing your condition effectively.



4. Embrace Assistive Technology:


Assistive technology can greatly enhance your independence and quality of life. Explore various devices and tools that can assist with mobility, communication, and daily activities. These may include mobility aids like wheelchairs or walkers, communication devices, modified computer interfaces, or adaptive utensils. Work closely with occupational therapists and assistive technology specialists to identify the most suitable options for your needs.



5. Focus on Abilities:


While cerebral palsy presents challenges, it is essential to focus on your abilities rather than limitations. Celebrate your strengths and accomplishments, no matter how small they may seem. Set realistic goals and work towards achieving them. Remember that everyone's journey is unique, and progress may take time. Stay positive and believe in your potential.



6. Prioritize Self-Care:


Living with CP can be physically and emotionally demanding. It is crucial to prioritize self-care to maintain your overall well-being. This includes getting enough rest, eating a balanced diet, engaging in activities you enjoy, and managing stress. Taking care of yourself will provide you with the energy and resilience needed to face the challenges that may arise.



7. Advocate for Yourself:


Become an active participant in your healthcare journey. Learn to advocate for your needs and rights. Educate others about cerebral palsy and raise awareness to promote inclusivity and understanding. By speaking up, you can help break down barriers and create a more inclusive society.



8. Seek Emotional Support:


Living with a chronic condition like cerebral palsy can sometimes be emotionally challenging. It is important to seek emotional support when needed. Consider talking to a therapist or counselor who specializes in working with individuals with disabilities. They can provide guidance, coping strategies, and a safe space to express your feelings.



9. Stay Informed about Resources:


Stay informed about available resources, financial assistance, and legal rights for individuals with cerebral palsy. Research local organizations, government programs, and support services that can provide additional support and guidance. Being aware of these resources can help you access the assistance you may need.



10. Live Life to the Fullest:


Remember that having cerebral palsy does not define you. Pursue your passions, set goals, and live life to the fullest. Surround yourself with positive influences and engage in activities that bring you joy. Embrace new experiences, challenge yourself, and never underestimate your potential to achieve great things.



While the journey with cerebral palsy may have its ups and downs, remember that you are resilient and capable of overcoming obstacles. With the right support, mindset, and determination, you can lead a fulfilling and meaningful life.


Diseasemaps
2 answers
Find out what you can do to get your body best prepared for life. Find a good PT. Stay active.

Posted Feb 20, 2017 by Michelle 1000

Cerebral Palsy advice

Cerebral Palsy life expectancy

What is the life expectancy of someone with Cerebral Palsy?

4 answers
Celebrities with Cerebral Palsy

Celebrities with Cerebral Palsy

1 answer
Is Cerebral Palsy hereditary?

Is Cerebral Palsy hereditary?

2 answers
Is Cerebral Palsy contagious?

Is Cerebral Palsy contagious?

3 answers
Natural treatment of Cerebral Palsy

Is there any natural treatment for Cerebral Palsy?

1 answer
ICD9 and ICD10 codes of Cerebral Palsy

ICD10 code of Cerebral Palsy and ICD9 code

2 answers
Living with Cerebral Palsy

Living with Cerebral Palsy. How to live with Cerebral Palsy?

2 answers
Cerebral Palsy diet

Cerebral Palsy diet. Is there a diet which improves the quality of life of ...

3 answers

World map of Cerebral Palsy

Find people with Cerebral Palsy through the map. Connect with them and share experiences. Join the Cerebral Palsy community.

Stories of Cerebral Palsy

CEREBRAL PALSY STORIES
Cerebral Palsy stories
Spina bifida is an abnormality of the nervous system that occurs in a baby's development during the first month pregnancy. Most textbooks define spina bifida as a neural tube defect or a gap in the fusing of the neural tube that encloses the spinal c...
Cerebral Palsy stories
My son was born with a birth weight of 1.8kg. he ws dianogsed with CP at few months after birth.
Cerebral Palsy stories
I was born with CP but due diverse issues only begun treatment at age 4. My CP type is mixed spastic-athetoid quadriplegia. I use a head pointer to write on computer. I also have a communication device in my wheelchair because I can't speak.
Cerebral Palsy stories
My condition is congenital, and mild. I was able to work normally for most of my working life. Now condition has 'progressed' and I cannot wpork. I walk, slowly and not far, witha tetrapod.
Cerebral Palsy stories
Hi everyone, I have had jaw, chronic head, neck and general face pain for about 30 years. I struggled with the pain, frustration and lack of pain control so much that I had to leave my job as a journalist after more than 20 years.  I'm sad, lonely,...

Tell your story and help others

Tell my story

Cerebral Palsy forum

CEREBRAL PALSY FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map