Stories of CHARGE Syndrome

CHARGE Syndrome stories
My son Joshua was born April 28, 2009. He has 8 heart defects, 2 strokes, a clinical CHARGE diagnosis (he doesn't have the coloboma), epilepsy, central apnea, hypopnea, Stage 3 kidney reflux, deaf, malformations in his ears preventing him to use CIs,...

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CHARGE Syndrome forum


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Statistics of CHARGE Syndrome

2 people with CHARGE Syndrome have taken the SF36 survey. Mean of CHARGE Syndrome is 2098 points (58 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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CHARGE Syndrome

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