Story about CHARGE Syndrome , Scoliosis.

NICHOLAS

Jul 25, 2017

By: Angela


My son was born in 1998. He has CHARGE - diagnosed within 24 hours and a whole list of additional issues they initially thought was Chromozone 6 Ring Syndrome.. After almost 100 surgical interventions - including 2 HEART, 2 eye, etc.. He is living in an independant full sstaffed living facility - his own apartment with 2 other Deaf- Blind individuals. YES he is Deaf- Blind - add it to the list. We are so thankful to CDBA ONTRIO and all their support

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