Stories of Cholesteatoma

STORY
Cholesteatoma stories
I call cholesteatoma the beast because it is. I started with ear infection in 2006. Then I noticed a hearing lose.Not intll 2011 did I get to a doctor who gave a proper diagnosis. Sent to Dr. Giddings in Spokane Wa. Had surgery to remove C Toma and p...
Cholesteatoma stories
Won't bore you with my dull medical history. Will say that it seems I am luckier than most, in that I have no day to day symptoms & I was able to swim, snorkel & even dive in some beautiful oceans before the disease was diagnosed. I felt fea...
Cholesteatoma stories
I lost my hearing over 2 years ago and all the doctors at camp lejeune kept telling me it was just ear infections. When my husband got orders to California my husband thought I was having a stroke because the right side of my face started to droop. H...
Cholesteatoma stories
My son was 11 when he was dx'd with a cholesteatoma in his left ear.  Two surgeries with a surgeon through University Hospital's Rainbow Babies & Children's Hospital within 9 months, both times a significant ctoma was removed.  3rd surg...
Cholesteatoma stories
Hannah is my 16 year daughter.  She has had problems with her ears since she was born.  Constant trips to gp pediatric Dr for antibiotics for ear infections and get big injection on antibiotics when it wouldn't clear up. There was no bounci...

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Statistics of Cholesteatoma

26 people with Cholesteatoma have taken the SF36 survey. Mean of Cholesteatoma is 1575 points (44 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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