A rare congenital form of cholesteatoma (one present at birth) can occur in the middle ear and elsewhere, such as in the nearby skull bones. However, the type of cholesteatoma associated with ear infections is most common. A cholesteatoma is skin growth that can develop in the middle section of your ear, behind the eardrum. It may be a birth defect, but it's most commonly caused by repeated middle ear infections. A cholesteatoma often develops as a cyst, or sac, that sheds layers of old skin.

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Cholesteatoma life expectancy

What is the life expectancy of someone with Cholesteatoma?

15 answers
Celebrities with Cholesteatoma

Celebrities with Cholesteatoma

6 answers
Is Cholesteatoma contagious?

Is Cholesteatoma contagious?

12 answers
Is Cholesteatoma hereditary?

Is Cholesteatoma hereditary?

11 answers


Initially, the ear may drain, sometimes with a foul odor. As the cholesteatoma pouch or sac enlarges, it can cause a full feeling or pressure in the ear, along with hearing loss and tinnitus. An ache behind or in the ear, especially at night, may cause significant discomfort. Dizziness, or muscle weakness on one side of the face (the side of the infected ear) can also occur. Any, or all, of these symptoms are good reasons to seek medical evaluation.

1.Congenital cholesteatoma: Primary acquired cholesteatoma or retraction cholesteatoma
2. Primary acquired cholesteatoma or retraction cholesteatoma
3. Secondary acquired cholesteatoma


  • you do have Cholesteatoma, then you might notice the following symptoms. Some of the symptoms exist depending on how long you have been suffering for.
  • Hearing loss – this is mostly temporary but if it isn’t diagnosed earlier then it could be permanent.
  • Vertigo – this is linked to loss of balance and a sense of dizziness
  • Noticeable fluid from the ear with a foul smell
  • Pain behind or in your ear over a period of time
  • Facial muscle paralysis – this is the symptom of severe cases of cholesteatoma.


  • If one wants to achieve complete healing of a cholesteatoma, the only option is surgery.
  • Specialist who treat it

    Natural treatment of Cholesteatoma

    Is there any natural treatment for Cholesteatoma?

    11 answers
    ICD9 and ICD10 codes of Cholesteatoma

    ICD10 code of Cholesteatoma and ICD9 code

    10 answers
    Living with Cholesteatoma

    Living with Cholesteatoma. How to live with Cholesteatoma?

    12 answers
    Cholesteatoma diet

    Cholesteatoma diet. Is there a diet which improves the quality of life...

    16 answers

    Stories of Cholesteatoma

    Cholesteatoma stories
    Case history: 2004 grommet l.s. (Szent István Hospital) June, October 2005: deviacio septi nasi, sinusitis ethmoidalis chr. (Szent István Hospital) 2006: mastoidectomia, atticoantrotomia, tympanoplastica. (MÁV Hospital) Janua...
    Cholesteatoma stories
    Hannah is my 16 year daughter.  She has had problems with her ears since she was born.  Constant trips to gp pediatric Dr for antibiotics for ear infections and get big injection on antibiotics when it wouldn't clear up. There was no bounci...
    Cholesteatoma stories
    I call cholesteatoma the beast because it is. I started with ear infection in 2006. Then I noticed a hearing lose.Not intll 2011 did I get to a doctor who gave a proper diagnosis. Sent to Dr. Giddings in Spokane Wa. Had surgery to remove C Toma and p...
    Cholesteatoma stories
    Won't bore you with my dull medical history. Will say that it seems I am luckier than most, in that I have no day to day symptoms & I was able to swim, snorkel & even dive in some beautiful oceans before the disease was diagnosed. I felt fea...
    Cholesteatoma stories
    My 12 year old had his first surgery 2 weeks ago. ( 9/7/2016) after discovering he had it in feb. No history of ear infections until December 15. How're had to have grommets in 3 years ago due to glue ear. From what I understand this is just the star...

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    Cholesteatoma forum

    Question 296
    Are you a part of any Facebook cholesteatoma groups?
    Question 644
    Hi, I would really like some info regarding laser treatment for ctoma. I know that this is available in the UK. Does anyone know if this is available in Ireland. Thanks

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    Statistics of Cholesteatoma

    38 people with Cholesteatoma have taken the SF36 survey. Mean of Cholesteatoma is 1755 points (49 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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