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What is the prevalence of Chordoma?

How many people does Chordoma affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Chordoma

Chordoma is a rare type of cancer that originates from the remnants of the notochord, a structure present during fetal development. It primarily affects the bones in the skull base and spine. The prevalence of chordoma is estimated to be approximately 1 in 1 million individuals worldwide. Although it is considered a rare condition, it can have significant impacts on patients' lives due to its aggressive nature and potential for recurrence. Early diagnosis and appropriate treatment are crucial for managing chordoma effectively.

Chordoma is a rare type of cancer that originates from the remnants of the notochord, a structure present during early development of the spine. It typically occurs in the bones of the skull base, spine, or sacrum. Due to its rarity, chordoma accounts for less than 1% of all primary bone tumors. The exact prevalence of chordoma is challenging to determine accurately, but it is estimated to affect approximately 1 in every 800,000 individuals worldwide. Although it can occur at any age, chordoma most commonly presents in adults between the ages of 40 and 70.

Chordoma poses significant challenges in diagnosis and treatment. Its slow-growing nature often leads to delayed diagnosis, and its location near critical structures makes complete surgical removal difficult. Additionally, chordoma has a high rate of recurrence, even after aggressive treatment. The rarity of this cancer also limits the availability of specialized treatment centers and research funding.

Efforts are being made to improve understanding and management of chordoma through collaborative research and clinical trials. These initiatives aim to develop more effective treatment strategies and ultimately improve outcomes for individuals affected by this rare cancer.
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Prevalence of Chordoma

Chordoma life expectancy

What is the life expectancy of someone with Chordoma?

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Celebrities with Chordoma

Celebrities with Chordoma

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Is Chordoma hereditary?

Is Chordoma hereditary?

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Is Chordoma contagious?

Is Chordoma contagious?

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Natural treatment of Chordoma

Is there any natural treatment for Chordoma?

1 answer
ICD9 and ICD10 codes of Chordoma

ICD10 code of Chordoma and ICD9 code

2 answers
Living with Chordoma

Living with Chordoma. How to live with Chordoma?

1 answer
Chordoma diet

Chordoma diet. Is there a diet which improves the quality of life of people...

1 answer

World map of Chordoma

Find people with Chordoma through the map. Connect with them and share experiences. Join the Chordoma community.

Stories of Chordoma

CHORDOMA STORIES
Chordoma stories
Initially diagnosed at age 16. Diagnosis was precipitated by onset of double vision shortly after a snowboarding trip. Full resection with wide margins done by the fantastic team at Vancouver General Hospital, followed by proton beam radiation in Lom...
Chordoma stories
My wife suffered sacral chordoma at 33 yrs and was operated at Massachusetts General Hospital. Since then she is battling the pains of the construct placed at the bottom of her spine.
Chordoma stories

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Chordoma forum

CHORDOMA FORUM

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