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How do I know if I have Chronic Cerebrospinal Venous Insufficiency?

What signs or symptoms may make you suspect you may have Chronic Cerebrospinal Venous Insufficiency. People who have experience in Chronic Cerebrospinal Venous Insufficiency offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Chronic Cerebrospinal Venous Insufficiency?

Chronic Cerebrospinal Venous Insufficiency (CCSVI) is a condition that affects the blood flow in the veins of the brain and spinal cord. It is characterized by the narrowing or blockage of these veins, leading to impaired blood drainage from the central nervous system.



Symptoms:


CCSVI can present with a variety of symptoms, although it is important to note that these symptoms are not exclusive to this condition and can be associated with other medical conditions as well. Some common symptoms of CCSVI include:




  • Chronic fatigue: Feeling excessively tired and lacking energy, even after adequate rest.

  • Cognitive difficulties: Problems with memory, concentration, and overall cognitive function.

  • Balance and coordination issues: Difficulty maintaining balance and coordination, leading to unsteady movements.

  • Visual disturbances: Blurred vision, double vision, or other visual impairments.

  • Weakness and numbness: Sensations of weakness or numbness in the limbs, often affecting one side of the body more than the other.

  • Chronic pain: Persistent pain, particularly in the neck, back, or limbs.



Diagnosis:


If you suspect you may have CCSVI, it is important to consult with a healthcare professional who can evaluate your symptoms and medical history. The diagnosis of CCSVI typically involves a combination of clinical assessment and imaging studies.



Doppler ultrasound: This non-invasive test uses sound waves to evaluate the blood flow in the veins of the neck and brain. It can help identify any abnormalities or blockages in the veins.



Magnetic Resonance Venography (MRV): This imaging technique uses magnetic fields and radio waves to create detailed images of the veins. MRV can provide a clearer picture of the blood flow and detect any narrowing or blockages.



Treatment:


Once diagnosed with CCSVI, treatment options can vary depending on the severity of symptoms and individual circumstances. Some common treatment approaches include:




  • Angioplasty: This procedure involves inserting a small balloon into the affected vein and inflating it to widen the narrowed area, improving blood flow.

  • Stent placement: In some cases, a stent may be inserted to help keep the vein open and maintain proper blood flow.

  • Medication: Certain medications may be prescribed to manage symptoms such as pain, fatigue, or cognitive difficulties.

  • Lifestyle modifications: Adopting a healthy lifestyle, including regular exercise, a balanced diet, and stress management techniques, can help improve overall well-being.



If you suspect you may have CCSVI, it is crucial to consult with a healthcare professional for an accurate diagnosis and appropriate treatment plan. They will be able to guide you through the necessary steps and provide personalized care based on your specific needs.


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Stories of Chronic Cerebrospinal Venous Insufficiency

CHRONIC CEREBROSPINAL VENOUS INSUFFICIENCY STORIES
Chronic Cerebrospinal Venous Insufficiency stories
I was diagnosed with multiple sclerosis in 2002.  I had been ill with MS symptomology since a 2000 tick bite.  After only treating for MS for ten years, since 2002, in 2012 I was found to have Lyme disease (probably had it since 2000) and began pro...
Chronic Cerebrospinal Venous Insufficiency stories
Dx Jan.1990 RRMS. Then in  Jan. 1993 SPMS.  DMD FREE.   CCSVI treated Sept. 2010.  Fatigue ... gone!  Bladder med cut 50%.  MS Hug ... gone.  Sleep better. Well being so much better.  Have been like this since Sept. 2010.  There  are other...
Chronic Cerebrospinal Venous Insufficiency stories
My daughter was dx at 15 with RRMS in November of 2012. She had issues from age 11, however. My husband was dx with PPMS in February of 2015. They both were treated for CCSVI with good results. She also takes LDN, supplements and changed her diet. No...
Chronic Cerebrospinal Venous Insufficiency stories
Hi,   I've had two CCSVI treatments both successful which made me look further I was dx with MS in 2002 and finally was tested for Lyme in 2013 by Igenix which came back positive I've been on most abx for over 2years but my walking is still crap, ...
Chronic Cerebrospinal Venous Insufficiency stories
Diagnosed with MS in 1990, had to stop working in 1992, and became secondary/progressive in mid '90's so never qualified for any of the drugs that came on the market because they were only for relapsing/remitting cases.  Continued to decline--6.5 on...

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