Pam's interview
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How did all start?
Three years ago I had a virus and never got better. Went to my doctor that said...you and everyone else has this. I got my thyroid tested...it was ok. Thought it would be just a matter of time before I would feel better but no here I am 3 years later. The doctor that told me I had CFS really meant ME but since they consider them to be the same I agreed to that name. I have since researched and now know I have ME due to reading the ICC and IC Primer. Everyone with this condition should read this and not use the name CFS...it means nothing and if you study the history of this disease you will see how the CDC and NIH have done their job to cover up this terrible disease.
Do you already have a diagnosis? How long did it take you to get it?
Yes, one year.
For what medical specialties have you been treated? What has been the most useful specialty for your?
The Thyroid. doctor was helpful and also the doctor that gave me the LDN RX. My new doctor listens and I hope to teach her about the condition.
What has been the most useful thing for you so far?
LDN and pacing and saying no.
What have been your biggest difficulties?
Not being able to socialize.
How has your social and family environment reacted? Have your social or family relationships changed?
My husband and family have learned all about this condition and helped me to start http://www.me-international.org If you right click on that link and then click on go to the site you can see what we are all about. We would love for you to join us and help to support and educate about this disease.
What things have you stopped doing?
Leaving the house. Loved to be with people and eat out daily. Now it is only twice a month if I am lucky.
What do you think about the future?
Hope to get my website off the ground and help people with this disease. Just highlight the link below and right click on the prompt to reach our website. http://www.me-international.org
So far, which years have been the best years in your life? What have you done during them?
I was older when I got this condition. I have done it all...travel, adventures etc. for that I am grateful.
What would you like to do if you didn’t have your condition?
Eat out more
If you had to describe your life in a sentence, what would it be?
An adventure...the website is my passion and why I want to get up the morning. Please highlight the link below and right click to reach our site. We would love for you to join us as a member and help spread the word about this terrible condition. We offer support and education. http://www.me-international.org
Finally, what advice would you give to a person in a similar situation?
Don't dwell on the condition. Research it and know all you can and then find a passion to keep you busy.
