Wendy's interview
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How did all start?
I caught a chest infection which turned into pneumonia and 6 months later I was diagnosed with M.E.
Do you already have a diagnosis? How long did it take you to get it?
I was diagnosed after 6 months but I have fibromyalgia too from 1998
For what medical specialties have you been treated? What has been the most useful specialty for your?
Pain clinic, psychology, GET (rubbish) and more pain clinic. The most useful is psychology
What has been the most useful thing for you so far?
Support from other sufferers where I know people will understand my grandson is what I focus on when things get really bad
What have been your biggest difficulties?
Coping with my useless body. Feel hopeless and can’t see the point.
How has your social and family environment reacted? Have your social or family relationships changed?
Ok. Taken a long time to fully understand my condition. Even now my mother still asks how I am where each day is the same. My husband is not only my rock but my carer too.
What things have you stopped doing?
Everything
What do you think about the future?
Bleak with no hope
So far, which years have been the best years in your life? What have you done during them?
Before I got ill
What would you like to do if you didn’t have your condition?
Anything and everything
If you had to describe your life in a sentence, what would it be?
Just rubbish
Finally, what advice would you give to a person in a similar situation?
Don’t give up. Seek others who suffer too on Facebook or social media. Although I’m very low I will always keep the faith of a cure
