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Is it easy to find a partner and/or maintain relationship when you have Chronic Fatigue Syndrome / M.E.?

People with experience in Chronic Fatigue Syndrome / M.E. give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Chronic Fatigue Syndrome / M.E.. What are the possible difficulties in having a relationship?

Couple and Chronic Fatigue Syndrome / M.E.

Is it easy to find a partner and/or maintain a relationship when you have Chronic Fatigue Syndrome / M.E.?


Living with Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (CFS/ME), can present unique challenges when it comes to finding and maintaining a romantic relationship. CFS/ME is a complex and debilitating condition characterized by extreme fatigue, pain, cognitive difficulties, and a range of other symptoms. These challenges can impact various aspects of life, including relationships.


Finding a Partner:


When it comes to finding a partner, individuals with CFS/ME may face some additional hurdles. The unpredictable nature of the condition can make it difficult to engage in social activities, meet new people, or maintain a consistent dating routine. Fatigue and other symptoms may limit the ability to go out, participate in hobbies, or attend social events where potential partners may be found.


However, it is important to remember that finding a partner is not solely determined by one's health condition. Many individuals with CFS/ME have successfully formed meaningful relationships. Here are some strategies that may help:



  • Online Dating: Utilizing online dating platforms can be a helpful way to connect with potential partners. It allows individuals to communicate and get to know each other from the comfort of their own homes, which can be particularly beneficial for those with limited energy or mobility.

  • Support Groups: Joining support groups or online communities specifically for individuals with CFS/ME can provide an opportunity to meet others who understand the challenges of living with the condition. These communities may also organize social events or gatherings where individuals can connect with potential partners.

  • Be Open and Honest: When getting to know someone, it is important to be open and honest about your condition. Sharing information about CFS/ME early on can help potential partners understand your limitations and provide an opportunity for them to be supportive and accommodating.


Maintaining a Relationship:


Once a relationship is established, maintaining it can also pose unique challenges for individuals with CFS/ME. The fluctuating nature of symptoms and the need for self-care can impact the dynamics of the relationship. Here are some strategies that may help:



  • Communication: Open and honest communication is crucial in any relationship, but it becomes even more important when one partner has CFS/ME. Regularly discussing how you are feeling, what your limitations are, and any adjustments that may be needed can help both partners understand and support each other.

  • Flexibility and Understanding: It is important for both partners to be flexible and understanding of the limitations imposed by CFS/ME. This may involve adjusting plans, being patient during periods of increased fatigue, and finding alternative ways to spend quality time together.

  • Supportive Environment: Creating a supportive environment is essential for maintaining a healthy relationship. This includes emotional support, understanding, and empathy from both partners. It may also involve seeking external support, such as therapy or counseling, to navigate the challenges that may arise.


Conclusion:


While living with Chronic Fatigue Syndrome / M.E. can present challenges in finding and maintaining a romantic relationship, it is not impossible. By utilizing online dating platforms, joining support groups, being open and honest about the condition, and maintaining effective communication and understanding within the relationship, individuals with CFS/ME can increase their chances of finding and maintaining a fulfilling partnership. It is important to remember that everyone's experience is unique, and finding the right partner who is understanding and supportive is key.


Diseasemaps
14 answers
It's difficult because people who are healthy cannot understand why you feel so bad doing so little.

Posted Aug 27, 2017 by Emy 2050
I don't know about finding a partner, I'd been married for 24 years when I developed ME.
Keeping a partner? I guess that depends on your partner, and what they value about your relationship. My husband takes his vows seriously and has taken care of me for the last 12 years. Some of it has been about accepting changing roles and making sure we have time together that's fun and we enjoy.

Posted Sep 5, 2017 by Shirley 2050
I am single & have zero energy for partners or children after 4 years of ME/CFS. I used to travel the world, teach internationally & research/grant write in USA: my REMAINING energy goes to doctors, research on ME/CFS, family, but I live alone in a quiet dark, cool bedroom, can only tolerate liquids, am exhausted by speaking, writing, thinking...I think if I were in a relationship it may not have survived the ravages of this disease.

Posted Sep 7, 2017 by 2560
It can put a strain on a relationship and I think the most important thing is helping your partner to understand ME/CFS and communicating how you are feeling in a factual way.

Posted Sep 8, 2017 by Sam 1400
Funny question
My experience is no
But many do have supportive husbands and partners
Its best to be alone tho thsn a dismissive or abusive neglectful one
We need love care patience and understanding
At moment we cant be fixed

Posted Jan 17, 2018 by Annette 2500
It is not easy for a partner to understand and accept this disease. There is a good percentage of married patients, either happily or not. There is a good percentage seeking a partner and a good percentage who are alone and not looking for anyone. Many have pets for partnership, because it's too hard to maintain a good relationship and even harder to find a new one. Everyone has to do what is right for their situation, therefore giving advice is difficult. These issues are best discussed on community forums.

Posted Mar 2, 2018 by Beti 2700
This is not easy. Many of your relationships will be strained as this is a silent, invisible disease.

Posted Aug 9, 2018 by cathy 2500
It is easier to train a dog to use the toilet and flush it than to maintain a relationship when you have ME
but it is not unheard of
you need in home care other than your spouse
and you should have it before you get a spouse if you can
then you have a better chance in the long run to keep him/her around

Posted Apr 6, 2019 by Fadra 2550
That depends on your partner.

Posted Dec 12, 2019 by Joanna 6200
Depends. Some partners are very willing to help, others can't stand the pressure and leave the relationship.

Posted Dec 21, 2019 by Pam 3550
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It is difficult, much, but it is one of aid most important psychological to overcome the disease.

Posted Sep 11, 2017 by Eduardo Casasnovas 2950
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Depends on the personality of each one.

Posted Sep 11, 2017 by Haydee de bielik 5120
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This question is very difficult to answer! Already have EM prevents, in large part, looking for couples, because it is not out much late at night. Maintain a relationship with a partner who does NOT understand the disease is almost impossible.
My marriage failed, I suffered a lot being in a flare and finally I chose to retire to be able to improve myself.
A couple if the two have EM - why not? You are going to understand perfectly!

Posted Oct 19, 2017 by Heidrun Kroner 2000

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