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How do I know if I have Chronic Fatigue Syndrome / M.E.?

What signs or symptoms may make you suspect you may have Chronic Fatigue Syndrome / M.E.. People who have experience in Chronic Fatigue Syndrome / M.E. offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Chronic Fatigue Syndrome / M.E.?

How do I know if I have Chronic Fatigue Syndrome / M.E.?


Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (CFS/ME), is a complex and debilitating condition characterized by extreme fatigue that cannot be explained by any underlying medical condition. If you have been experiencing persistent fatigue for an extended period, it is important to consider the possibility of CFS/ME. However, it is crucial to consult with a healthcare professional for an accurate diagnosis. While I am not a doctor, I can provide you with some general information on the signs and symptoms associated with CFS/ME.


1. Persistent Fatigue: The primary symptom of CFS/ME is an overwhelming and persistent fatigue that is not relieved by rest or sleep. This fatigue can significantly impact your daily activities and may worsen with physical or mental exertion.


2. Post-Exertional Malaise (PEM): Individuals with CFS/ME often experience a worsening of symptoms after physical or mental exertion. This post-exertional malaise can last for several days or even weeks, causing a significant decline in energy levels and overall well-being.


3. Cognitive Difficulties: Many people with CFS/ME experience cognitive impairments commonly referred to as "brain fog." This can manifest as difficulties with concentration, memory, and processing information, making it challenging to perform tasks that require mental focus.


4. Sleep Disturbances: Sleep problems are common in individuals with CFS/ME. You may experience difficulties falling asleep, staying asleep, or waking up feeling unrefreshed despite adequate rest.


5. Muscle and Joint Pain: Many individuals with CFS/ME report muscle and joint pain without any apparent cause. These pains can be widespread or localized and may fluctuate in intensity.


6. Flu-like Symptoms: CFS/ME can often present with flu-like symptoms such as sore throat, tender lymph nodes, headaches, and low-grade fever.


7. Other Symptoms: Additional symptoms that may be associated with CFS/ME include dizziness, nausea, digestive issues, sensitivity to light and noise, and mood disturbances such as depression or anxiety.


It is important to note that the symptoms of CFS/ME can vary from person to person, and not everyone will experience the same combination or severity of symptoms. Furthermore, these symptoms can also be indicative of other medical conditions, so it is crucial to consult with a healthcare professional for a proper evaluation.


A diagnosis of CFS/ME typically involves ruling out other potential causes for your symptoms through a comprehensive medical history, physical examination, and various diagnostic tests. These tests may include blood tests, imaging studies, and assessments of cognitive function.


If you suspect you may have CFS/ME, it is recommended to seek medical advice from a healthcare professional who specializes in this condition. They will be able to evaluate your symptoms, provide an accurate diagnosis, and develop an appropriate management plan tailored to your specific needs.


Diseasemaps
14 answers
Extreme tiredness and flu like symptoms for more than 6 months without a known cause.

Posted Aug 27, 2017 by Emy 2050
Post exertional malaise, poor, unrefreshing sleep, swollen glands, fatigue of unknown cause, all of a sudden onset with a viral flu-like infection beforehand.

Posted Sep 5, 2017 by Shirley 2050
Post exertion/exercise fatigue/malaise that takes days weeks or months to recover from (this seems to be the one factor we all have in common at the outset of ME/CFS).

Posted Sep 7, 2017 by 2560
It took 20 months of many doctors and mis diagnoses before I was finally diagnosed by an experienced cardiologist at a women's center.

Posted Sep 10, 2017 by Sharon 1500
Difficult one for me to answer
But a doctor or specialist like endocrinologist neurologist

Posted Jan 17, 2018 by Annette 2500
If your life has been completely changed suddenly, if you sleep constantly or not at all, if someone asks you how you are and you wonder whether the pain you now feel is going to be gone by the time you answer and another one took its place... and in any case you know you are not just 'tired'... or if you had the flu and it lingers on without stopping... have all other diseases eliminated, go to an ME-CFS clinic to be seen by a real specialist to be sure. I would not skimp on this step.

Posted Mar 2, 2018 by Beti 2700
Visit your primary care doctor or a rheumatologist that will not brush your symptoms aside.

Posted Aug 9, 2018 by cathy 2500
Neurological and immune issues that are new and scary
a really long course of flu or mono that leaves you less able afterwards
the inability to stay in an upright position without edema
pallor
red crescents on tonsils
dropping things, unrestful sleep at night
migraines
a Dx of Fibro
strange and frequent infections
lack of former stamina
[this is all different in pediatric ME]
Go to your GP and keep a symptom diary between visits
ask for a referral to a neurologist and and immunologist

Posted Apr 6, 2019 by Fadra 2550
You have had unexplained flu-like symptoms that won't go away, and/or have progressed into more bizarre symptoms.

Posted Dec 12, 2019 by Joanna 6200
Look at the symptoms in the IC Primer and then take that to your doctor. Here is the link https://www.me-international.org/understanding-criteria.html

Posted Dec 21, 2019 by Pam 3550
Translated from spanish Improve translation
If you can't do the same you did yesterday, if you bothered by noises, certain smells, headaches, blurred vision, not able to think, memory problems, it is necessary to pass by the doctor.

Posted Sep 11, 2017 by Eduardo Casasnovas 2950
Translated from spanish Improve translation
You will be sitting up or lying even though you have to do something very important, you don't have strength, you will have weakness.

Posted Sep 11, 2017 by Haydee de bielik 5120
Translated from spanish Improve translation
If I have a persistent fatigue that keeps me from doing a normal life I already have which you suspect of suffering from CFS / me.
Are attached to cognitive disorders and memory.
Sleep disorders repeated.
All for more than 6 months.
...and many other symptoms more.
I consulted two neurologos, and a family physician.
The SPECT was the exam more relevant.

Posted Oct 19, 2017 by Heidrun Kroner 2000

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