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What are the best treatments for Chronic Fatigue Syndrome / M.E.?

See the best treatments for Chronic Fatigue Syndrome / M.E. here

Chronic Fatigue Syndrome / M.E. treatments

Treatments for Chronic Fatigue Syndrome / M.E.


Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (M.E.), is a complex and debilitating condition characterized by extreme fatigue that cannot be explained by any underlying medical condition. While there is no cure for CFS/M.E., there are various treatments available to manage symptoms and improve quality of life. It is important to note that treatment plans may vary for each individual, and a multidisciplinary approach is often recommended.



1. Lifestyle Changes


Implementing lifestyle changes is crucial in managing CFS/M.E. symptoms. This includes:



  • Pacing: Learning to balance activities and rest to avoid overexertion and crashes.

  • Activity Management: Gradually increasing physical and mental activities to improve stamina and function.

  • Sleep Hygiene: Establishing a regular sleep routine and creating a comfortable sleep environment.

  • Stress Reduction: Utilizing relaxation techniques, such as deep breathing and meditation, to manage stress levels.

  • Dietary Changes: Following a balanced diet, avoiding trigger foods, and staying hydrated.



2. Medications


Medications may be prescribed to alleviate specific symptoms associated with CFS/M.E.:



  • Pain Relief: Over-the-counter pain relievers or prescription medications may be recommended to manage muscle and joint pain.

  • Sleep Aids: In some cases, sleep medications or supplements may be prescribed to improve sleep quality.

  • Antidepressants: Certain antidepressant medications can help manage pain, improve sleep, and alleviate symptoms of depression or anxiety.



3. Cognitive Behavioral Therapy (CBT)


Cognitive Behavioral Therapy is a psychological treatment that focuses on changing negative thoughts and behaviors. It can be beneficial for individuals with CFS/M.E. by:



  • Addressing Coping Strategies: Developing effective coping mechanisms to manage symptoms and improve daily functioning.

  • Managing Stress: Learning stress reduction techniques and developing resilience.

  • Improving Sleep: Addressing sleep disturbances and establishing healthy sleep patterns.

  • Setting Realistic Goals: Assisting in setting achievable goals and managing expectations.



4. Graded Exercise Therapy (GET)


Graded Exercise Therapy involves gradually increasing physical activity levels over time. It is important to note that GET should be tailored to each individual's capabilities and limitations. Benefits of GET may include:



  • Improved Stamina: Gradually increasing activity levels can help improve overall stamina and reduce fatigue.

  • Enhanced Functioning: Building strength and endurance to perform daily activities with less difficulty.

  • Mood Enhancement: Regular exercise can release endorphins, improving mood and reducing symptoms of depression.



5. Alternative Therapies


Alternative therapies may be considered as complementary approaches to conventional treatments. These include:



  • Acupuncture: Stimulating specific points on the body with fine needles to promote healing and alleviate symptoms.

  • Massage Therapy: Manipulating muscles and soft tissues to reduce pain, relieve tension, and improve relaxation.

  • Mind-Body Techniques: Practices such as yoga, tai chi, and meditation that promote relaxation, reduce stress, and improve overall well-being.

  • Herbal Supplements: Some individuals find relief from certain symptoms by using herbal supplements, but it is important to consult with a healthcare professional before trying any.



It is essential for individuals with CFS/M.E. to work closely with healthcare professionals to develop a personalized treatment plan. While there is no one-size-fits-all approach, a combination of lifestyle changes, medications, psychological therapies, and alternative treatments can help manage symptoms, improve daily functioning, and enhance overall well-being.


Diseasemaps
32 answers
Only thing that has worked much for my wife is adrenal creams to raise adrenal levels in morning and lower at night. That gives her some energy through the day and allows her to sleep normally although still not waking refreshed.

Posted Apr 17, 2019 by MEAction of CO
L.D.N. has help me the most plus pacing

Posted Dec 20, 2019 by ME International
I haven't tried many, but amitriptyline made a big difference as it stops the muscle spasms that keep me awake.

Posted Feb 21, 2017 by Catherine 1002
None that I am aware of. Rest lessens the symptoms at times.

Posted Feb 22, 2017 by Karen Lisa 302
I was literally suicidal not because I wanted to be dead, only because I wanted to escape that wretched pain that tormented me night and day for the first two years. The pain was so severe and no one seemed to believe how severe it was! I could see the doctors notes where it stated I was "catastrophizing" I knew they had no idea 10-20% of ME patients commit suicide to escape the treachery! The best treatment for me was the Fentanyl pain patch along with morphine tablets for breakthrough pain as needed twice daily! I'm sure I would've succumbed if my doctor hadn't finally provided this for me! I still have a great deal of pain, but at least I have a way to manage it!

I also got postural orthostatic tachycardia syndrome (POTS) about two years after I got sick and could not even sit up without my heart rate and blood pressure skyrocketing too dangerous heights, so of the very next best treatment has been one liter of IV NS fluids every other day . I could finally at least sit up in a recliner and not be at risk for having a stroke when I walked short distances to the bathroom!

Posted Apr 6, 2017 by Christina Maria Cooper 350
One of the best bits of advise I read early on was the 50% therapy. Meaning you only do HALF of what you think you can do. This allows your body to have energy to work on repairing itself. If you push then you will make yourself sicker. When in doubt, rest!

Posted Apr 7, 2017 by Linda D 352
Pacing yourself and taking regular rests getting good sleep

Posted Apr 27, 2017 by Miranda 406
Rest

Posted May 4, 2017 by Ben 1079
Rest and understanding

Posted May 11, 2017 by Lymie 201
I've not found a treatment that I can say is really effective. I'm on dextoamphetamine, percocet & citalipram, only meds I've found that can prevent me from being bed bound. Also take a variety of vitamins.
Pacing & planning how to use your limited energy.

Posted May 12, 2017 by missylob 1056
The only thing that has helped me in 26 years us MSM (metilsulfonilmetano).

Posted Aug 27, 2017 by Emy 2050
clean foods, exercise, and just being good to yourself.

Posted Aug 30, 2017 by Jaime 800
There aren't any. Drugs will reduce the impact of symptoms, though.

Posted Sep 5, 2017 by Shirley 2050
The right anti viral may have worked IF reactivated Epstein Barr Virus (off the charts ) had been diagnosed sooner. However, modern western doctors are not taught about (epidemic) viruses or anti-virals so I had to do the research & battle them alone. By the time I got along term, high dose anti-virals, the disease was entrenched...

Posted Sep 7, 2017 by 2560
Take magnesium to help leg pain and restless legs, but the biggest help has been seeeing an Osteopath to be treated with the Perrin Technique

Posted Sep 8, 2017 by Sam 1400
Rest
Modified Keto diet (Keto without fat loading)
Limit activity
Hydrating
Supplement Electrolytes
Getting into one of the few MECFS doctors soon.

Posted Sep 10, 2017 by Sharon 1500
Theres no treatment
Research is sadly underfunded and the illness has been mistepresented by media calling it other names to hide it or put it into an innacurate label . Its physical and up to know i do not have any treatment

Posted Jan 17, 2018 by Annette 2500
Having a doctor who takes CFS-ME seriously and shows they care along with their staff comes first before any other treatment - being treated with compassion.

Posted Mar 2, 2018 by Beti 2700
Rest
Epsom salts in hot bath
Yoga
Swimming
Gabapentin
Drink lots of water
Deep breathing

Posted Aug 9, 2018 by cathy 2500
Rest
clean food and water
quiet clean environment
more rest
High dose IV vitamin C [to lower the viral load on the end organs]
detoxifying herbs to help reduce the level of toxins in the blood
IGG IV therapy
various supplements, according to symptomology
more rest
but there is no treatment for ME proper as of yet, the above only help to slow the progression

Posted Apr 6, 2019 by Fadra 2550
Pacing
Low Dose Naltrexone
tVNS
Ampligen
None

Posted Aug 3, 2019 by Jessica 1200
Avoid exposure to chemicals, sauna detox, daily organic food-based multivitamins (3x/day), cool showers, audit your lifestyle for chemicals and EMF pollution.

Posted Dec 12, 2019 by Joanna 6200
Pacing, LDN, other vitamins and minerals.

Posted Dec 21, 2019 by Pam 3550
Rest. Pacing. Anti inflammatories such as neurofen
Or nsaids. I also take Valtrex low dose and Propranalol to help when my bodies over excited.

Posted Mar 11, 2020 by yasmin1 300
Sleep, but if you can’t afford to not work, zenzedi was prescribed to me, and it can help me get through the day. Nothing else has helped.

Posted Jan 17, 2021 by Emmy 2250
Carnitine
Ubiquinol
LDN
Medications that treat Ortostatic Intolerance

Posted Nov 18, 2022 by Arlette 1300
Translated from spanish Improve translation
There is No one particular still. You are experimenting with monoclonal antibodies ( Rituximab ) and other antivirals.

Posted Mar 6, 2017 by Yabisa 700
Translated from spanish Improve translation
Physiotherapy , orrhomol vital f, inmunoferon. Do not cure it.. But it will help to have some more forces... The problem q takes in do effect about 6 months.. And after 10 the effect is not the same. The q tends to be good for one thing is bad for another... Topiramate prevents my migraines.. But more tiring

Posted May 25, 2017 by Cristina 601
Translated from spanish Improve translation
There are three parts. One is to work with the psychological, the other physical, and other food. The three are simultaneous and must always be present.

Posted Sep 11, 2017 by Eduardo Casasnovas 2950
Translated from spanish Improve translation
Anxiolytics, antidepressants, lithium, quetiapine, tryptophan with vitamins.

Posted Sep 11, 2017 by Haydee de bielik 5120
Translated from spanish Improve translation
In practice there is no treatment that will cure the EM. Duloxetine improves neurotransmision, Pregabalin is used for neuropathic pain, paracetamol.

Posted Oct 19, 2017 by Heidrun Kroner 2000

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Mine is a story of gradual onset MECFS.  I was in my late twenties when my life began to 'not make sense'.   This was in 1976. I had always been active in sports and was fully engaged in being a wife and mother of two young preschool children.  M...
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Mold Warriors by Dr Ritchie Shoemaker Gateway Press 2005 Chapt. 23 Mold at Ground Zero for CFS   The history of Chronic Fatigue Syndrome (CFS) begins in Incline Village, Nevada in 1985. In the medical history of CFS, each of the concepts applies-...
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I wish that more MDs thought more carefully about CVID, PANS/PANDAS and EDS/MCAS.  If I had been diagnosed and treated earlier in life with Igs (instead of being called a hypochondriac and shuffled off to conventional psychiatry), I may not have end...
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I was your typical average teenage girl always out running around. always out scaring my parents because yet again i was doing something crazy like climbing a really high tree, or riding my bike to close to the duck pond, or going fishing and forgeti...
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Hi all Here is my story.... I started having problems with my knees when I was about 11yrs old, docs just thought it was growing pains and all they did was give me antiinflammatories. As I approached my mid teens I started sleeping in class althoug...

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Chronic Fatigue Syndrome / M.E. forum

CHRONIC FATIGUE SYNDROME / M.E. FORUM
Chronic Fatigue Syndrome / M.E. forum
Have you used Colloidal Gold and if so is it helping you at all?
Chronic Fatigue Syndrome / M.E. forum
any supplement/homepathic med for adrenal fatigue insomnia (sudden awakening at night after 3-4 hours of sleep and then inability to fall asleep again)?
Chronic Fatigue Syndrome / M.E. forum
 LBL did study of CO2 in air on thought and finds quite surprisingly, thought gets much worse if CO2 in outside air of 400ppmv, goes up from exhaled breath at 40,000 ppm, to raise room ambient to 1000ppmv or greater. Free reference: http://...

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