Story about Chronic Granulomatous Disease , Hypoparathyroidism.

My life

Dec 25, 2017

By: carrie123

Year Condition Began: 2015


It all started with a hole in my eardrum. I kept having bad headaches so I decided to fix the hole in my eardrum. I had the hole repaired and had a second surgery to remove a tumor that had developed. The tumor crushed my eardrum and I had to have a complete ear drum rebuilt. I had a cholesteatoma. My headaches were worse than ever, I barely could work, I was so tired from my headaches. My surgery lasted for about 5hrs total, they had to drain the tumor which was filled with infection. My ear had been cut halfway off 2 times.

After surgery I had repeated kidney infections, bladder infections, my thyroid quit without notice, I had around 3 respiratory infections. Every time I got over one thing something else would happen, then when I got another respiratory infection I had to go the ER because I was having chest pains and couldn't bare to walk. My x ray diagnosed me with bronchitis and I don't even smoke and diagnosed me with Chronic Granulomatous Disease because my lungs were scarred from the other infections that I had.

Since then, I just stay tired a lot an have had a couple rashes that got infected that I couldn't get healed on my own. Since I still work I have had a lot of leg cramps and joint pain and just feel constant tiredness.

I have had a lot of breathing problems lately.

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