12

Is there any natural treatment for Cleidocranial Dysplasia?

Are there natural treatment(s) that may improve the quality of life of people with Cleidocranial Dysplasia? Here you can see if there is any natural remedy and/or treatment that can help people with Cleidocranial Dysplasia

Natural treatment of Cleidocranial Dysplasia

Is there any natural treatment for Cleidocranial Dysplasia?


Cleidocranial Dysplasia (CCD) is a rare genetic disorder that affects the development of bones and teeth. It is caused by mutations in the RUNX2 gene, which plays a crucial role in bone and tooth formation. CCD can lead to various skeletal abnormalities, including underdeveloped or absent collarbones, delayed closure of fontanelles (soft spots on the skull), and dental problems.


While there is currently no known cure for CCD, there are several natural treatment options that can help manage the symptoms and improve the quality of life for individuals with this condition.



1. Physical Therapy and Exercise


Physical therapy can be beneficial for individuals with CCD to improve muscle strength, coordination, and mobility. It can also help with posture correction and enhance overall physical function. A physical therapist can design a personalized exercise program to address specific needs and limitations.



2. Dental Care


Dental care is an essential aspect of managing CCD. Regular visits to a dentist who specializes in treating patients with craniofacial conditions can help address dental abnormalities associated with CCD. Treatments may include orthodontic interventions, dental implants, or other procedures to improve oral health and function.



3. Speech Therapy


Speech therapy can be beneficial for individuals with CCD who experience speech difficulties due to dental or craniofacial abnormalities. A speech therapist can provide exercises and techniques to improve speech clarity and communication skills.



4. Nutritional Support


Nutritional support is important for individuals with CCD, as they may have difficulty chewing or swallowing due to dental abnormalities. Ensuring a well-balanced diet that meets their nutritional needs can help promote overall health and well-being.



5. Psychological Support


Psychological support is crucial for individuals with CCD and their families, as living with a rare genetic disorder can be challenging. Connecting with support groups or seeking counseling can provide emotional support, education, and resources to cope with the physical and emotional aspects of CCD.



6. Assistive Devices


Assistive devices such as braces, splints, or orthotics may be recommended to support proper bone development and improve mobility. These devices can help individuals with CCD maintain better posture and reduce the risk of injuries.



7. Regular Medical Monitoring


Regular medical monitoring is essential for individuals with CCD to track their bone and dental development. This allows healthcare professionals to identify and address any potential complications or issues promptly.



It is important to note that while natural treatments can help manage the symptoms of CCD, they cannot reverse the underlying genetic mutation. Therefore, it is crucial for individuals with CCD to work closely with a healthcare team specializing in genetic disorders to develop a comprehensive treatment plan.


Diseasemaps
2 answers
No.
The mouth can be surgically fixed, and the arms can be strengthened through physical therapy at an early age though.

Posted Oct 5, 2017 by Amanda 100

Natural treatment of Cleidocranial Dysplasia

Cleidocranial Dysplasia life expectancy

What is the life expectancy of someone with Cleidocranial Dysplasia?

3 answers
Celebrities with Cleidocranial Dysplasia

Celebrities with Cleidocranial Dysplasia

2 answers
Is Cleidocranial Dysplasia hereditary?

Is Cleidocranial Dysplasia hereditary?

4 answers
Is Cleidocranial Dysplasia contagious?

Is Cleidocranial Dysplasia contagious?

3 answers
ICD9 and ICD10 codes of Cleidocranial Dysplasia

ICD10 code of Cleidocranial Dysplasia and ICD9 code

2 answers
Living with Cleidocranial Dysplasia

Living with Cleidocranial Dysplasia. How to live with Cleidocranial Dysplas...

2 answers
Cleidocranial Dysplasia diet

Cleidocranial Dysplasia diet. Is there a diet which improves the quality of...

1 answer
History of Cleidocranial Dysplasia

What is the history of Cleidocranial Dysplasia?

1 answer

World map of Cleidocranial Dysplasia

Find people with Cleidocranial Dysplasia through the map. Connect with them and share experiences. Join the Cleidocranial Dysplasia community.

Stories of Cleidocranial Dysplasia

CLEIDOCRANIAL DYSPLASIA STORIES
Cleidocranial Dysplasia stories
I was diagnosed before I was born. My mother and my grandmother both have Cleidocranial Dyplasia. I have only met one other person outside of my family that had Cleidocranial dysphasia. I am 22 years old and haven't had a single needed surgery becaus...
Cleidocranial Dysplasia stories
I was born with cleidocranial dysplasia. It is a congenital disorder primarily affecting the bones and teeth. I had multiple mouth surgeries through childhood. It's been said I had the sharks equivalent of teeth. I am 30 and due to funds I am still n...
Cleidocranial Dysplasia stories
  IN MY SCHOOL MAKE ME BULLYNG AND I GIVE PENALTY
Cleidocranial Dysplasia stories
I am a spontaneous occurrence.
Cleidocranial Dysplasia stories
I was born and raised in Colorado. I got diagnosed with CCD at a very young age. I don't have collar bones at all, had 3 different surgeries for my baby teeth to be removed and my adult teeth to come in. I had braces for 5-6 years to aid the process....

Tell your story and help others

Tell my story

Cleidocranial Dysplasia forum

CLEIDOCRANIAL DYSPLASIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map