2

What are the best treatments for Cleidocranial Dysplasia?

See the best treatments for Cleidocranial Dysplasia here

Cleidocranial Dysplasia treatments

Treatments for Cleidocranial Dysplasia


Cleidocranial Dysplasia (CCD) is a rare genetic disorder that affects the development of bones and teeth. It is characterized by the underdevelopment or absence of collarbones, delayed closure of the skull, and dental abnormalities. While there is no cure for CCD, there are several treatments available to manage its symptoms and improve the quality of life for individuals with this condition.



Orthodontic Treatment


One of the primary concerns in CCD is dental abnormalities, such as delayed eruption of permanent teeth, overcrowding, and misalignment. Orthodontic treatment plays a crucial role in managing these issues. Braces are commonly used to align teeth and correct bite problems. In severe cases, orthognathic surgery may be required to correct jaw alignment and improve facial aesthetics.



Oral Surgery


Individuals with CCD often have retained primary teeth that do not fall out naturally. These retained teeth can cause problems with the eruption of permanent teeth and may require extraction. Additionally, dental implants can be considered to replace missing teeth and restore proper function and aesthetics.



Speech Therapy


CCD can affect speech development due to dental abnormalities and the shape of the skull. Speech therapy can help individuals improve their speech clarity, articulation, and overall communication skills. A speech therapist can provide exercises and techniques to address specific speech difficulties associated with CCD.



Physical Therapy


As CCD affects the development of bones, individuals may experience muscle weakness and joint problems. Physical therapy can help improve muscle strength, flexibility, and overall physical function. A physical therapist can design a personalized exercise program to address specific needs and improve mobility.



Regular Dental Care


Due to the dental abnormalities associated with CCD, individuals require regular dental check-ups and oral hygiene maintenance. Dentists can monitor the eruption of permanent teeth, address any dental issues promptly, and provide guidance on proper oral care techniques.



Psychological Support


Living with a rare genetic disorder like CCD can have emotional and psychological impacts. It is essential to provide individuals and their families with psychological support to cope with the challenges they may face. Counseling or support groups can offer a safe space to share experiences, seek guidance, and find emotional support.



While there is no cure for Cleidocranial Dysplasia, these treatments can significantly improve the quality of life for individuals with this condition. It is important to consult with a team of healthcare professionals, including orthodontists, oral surgeons, speech therapists, physical therapists, and psychologists, to develop a comprehensive treatment plan tailored to the individual's specific needs.


Diseasemaps
3 answers
I had a wonderful team for my dental work (A dentist, maxillofacial surgen, and orthodontist). Now that my teeth have been brought in, I focus on my back and joint health. I go to the chiropractor weekly, and feel much better when I get regular exercise.

Posted May 16, 2017 by Paige 600
Translated from spanish Improve translation
There is No specific treatment, depending on the symptoms that are appearing will be dealing with bone problems or maxillofacial.

Posted May 17, 2017 by Sonia 1370

Cleidocranial Dysplasia treatments

Cleidocranial Dysplasia life expectancy

What is the life expectancy of someone with Cleidocranial Dysplasia?

3 answers
Celebrities with Cleidocranial Dysplasia

Celebrities with Cleidocranial Dysplasia

2 answers
Is Cleidocranial Dysplasia hereditary?

Is Cleidocranial Dysplasia hereditary?

4 answers
Is Cleidocranial Dysplasia contagious?

Is Cleidocranial Dysplasia contagious?

3 answers
Natural treatment of Cleidocranial Dysplasia

Is there any natural treatment for Cleidocranial Dysplasia?

2 answers
ICD9 and ICD10 codes of Cleidocranial Dysplasia

ICD10 code of Cleidocranial Dysplasia and ICD9 code

2 answers
Living with Cleidocranial Dysplasia

Living with Cleidocranial Dysplasia. How to live with Cleidocranial Dysplas...

2 answers
Cleidocranial Dysplasia diet

Cleidocranial Dysplasia diet. Is there a diet which improves the quality of...

1 answer

World map of Cleidocranial Dysplasia

Find people with Cleidocranial Dysplasia through the map. Connect with them and share experiences. Join the Cleidocranial Dysplasia community.

Stories of Cleidocranial Dysplasia

CLEIDOCRANIAL DYSPLASIA STORIES
Cleidocranial Dysplasia stories
I was diagnosed before I was born. My mother and my grandmother both have Cleidocranial Dyplasia. I have only met one other person outside of my family that had Cleidocranial dysphasia. I am 22 years old and haven't had a single needed surgery becaus...
Cleidocranial Dysplasia stories
I was born with cleidocranial dysplasia. It is a congenital disorder primarily affecting the bones and teeth. I had multiple mouth surgeries through childhood. It's been said I had the sharks equivalent of teeth. I am 30 and due to funds I am still n...
Cleidocranial Dysplasia stories
  IN MY SCHOOL MAKE ME BULLYNG AND I GIVE PENALTY
Cleidocranial Dysplasia stories
I am a spontaneous occurrence.
Cleidocranial Dysplasia stories
I was born and raised in Colorado. I got diagnosed with CCD at a very young age. I don't have collar bones at all, had 3 different surgeries for my baby teeth to be removed and my adult teeth to come in. I had braces for 5-6 years to aid the process....

Tell your story and help others

Tell my story

Cleidocranial Dysplasia forum

CLEIDOCRANIAL DYSPLASIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map