- Cluster Headaches
- Interviews
Billneva's interview
How did all start?
I noticed headaches that started in my 20's and found that nothing helped with the pain.
Do you already have a diagnosis? How long did it take you to get it?
It originally took 4 months to get a diagnosis but many changes have been made to it although I have had no change in symptoms so it doesn't make sense to me why my neurologist changes it
For what medical specialties have you been treated? What has been the most useful specialty for your?
N/A I have seen many specialist
What has been the most useful thing for you so far?
Steroids until I finish them and the CH's are right back
What have been your biggest difficulties?
Trying to have a normal life
How has your social and family environment reacted? Have your social or family relationships changed?
Yes, my spouse is over hearing about the pain and I find it easier to isolate myself instead of explain my diagnosis
What things have you stopped doing?
Almost everything social, also afraid to drive very much due to not knowing when a Cluster will hit
What do you think about the future?
Depressed about the likelihood of having to live with this forever
So far, which years have been the best years in your life? What have you done during them?
Early 20's, having my children
What would you like to do if you didn’t have your condition?
Work, church, life
If you had to describe your life in a sentence, what would it be?
Dreadful
Finally, what advice would you give to a person in a similar situation?
Try to stay hopeful and remember YOU know your body better than anyone else