What is the life expectancy of someone with Cluster Headaches?

Life expectancy of people with Cluster Headaches and recent progresses and researches in Cluster Headaches

Cluster Headaches life expectancy
24 answers
Well this is a loaded question. Some people go way to early mostly because they can't bear the pain of the disease and don't the proper support group. Others are able to function and live a semi normal life and live a long time. I think a song time goes on we will continue to see new treatments like Neurostimulation that will become more prevelant. There are others that are currently being researched such as Ketamine.

Posted Feb 21, 2017 by Lucas 1152
CH is not lethal, only suicide is a risk

Posted Mar 3, 2017 by Yoda 4292
I know that the life expectancy of cluster headache sufferers exceeds 65 (where I am now).
On the forums you will find people of all ages. While you feel extremely sad for children as young as 7 copping this at such an early age there are some long time sufferers who have had to deal with it throughout their life.
Cluster headaches are also known and well named as suicide headaches so there have been sufferers in the past that have not achieved the term of their natural life.

Posted Mar 4, 2017 by Donna 1005
I thought it was the same as everyone else's unless there is something I don't know about. I know there is something available at the moment which is an implant in the skull but don't think it's widely available yet.

Posted Apr 27, 2017 by Matthew Bcfc 1000
Life expectancy is good. New thing is botox injections and implant of neuro stimulators.

Posted May 21, 2017 by Pepe922 2000
We are all ages. I really don't know

Posted Jun 3, 2017 by Maria 2001
It is the same as someone that doesn't get CH

Posted Jun 4, 2017 by Tim 2150
Will power and support groups

Posted Jun 11, 2017 by Jeff D 2000
Other than the risk of suicide there seems to be no correlation, no permanent damage physiologically anyway.

Posted Sep 23, 2017 by stan 1000
The other name for cluster headaches is suicide headaches. The headaches don't kill you directly, being worn down by them does.

Posted Oct 18, 2017 by Nigel 500
Cluster Headaches are not killers - -they are not cancer or heart disease. However, there are secondary conditions that go along with CH. For example, I have Horner's Syndrome from my Chronic Cluster Headaches. I had four MRIs to determine that the Horner's was caused by CH and not something life-threatening. My vision is slightly impaired as a result. I would say that someone with CH can life a normal lifespan if they make a decision to not let the pain control their life and to keep living life to the fullest possible. Keep participating in studies about CH, be informed about new treatments, do not give up -- it is possible the scientists/doctors will one day figure this out.

Posted Oct 26, 2017 by Lee-Alison 2000
Life expectancy is normal. Suicide is high in those with cluster headaches

Posted Dec 22, 2017 by Ange 200
There are no assumptions to anyone about this ... Apparently not everyone has yet understood the disease and is not aware of what suffering it is causing ... Perhaps in the future they will understand more

Posted Feb 1, 2018 by Danny 3050
Normal, life is not shortened.

Posted Oct 20, 2018 by Michael Trapp 1600
same as other people

Posted Nov 7, 2018 by Oliver 3000
Well this is a loaded question. Some people go way to early mostly because they can't bear the pain of the disease and don't the proper support group. They throw themselves for a train or jump of a building or do other things to end their life.Others are able to function and live a semi normal life and live a long time. Lucky enough in time we will continue to see new treatments like Neurostimulation that will become more prevelant. There are others that are currently being researched such as Ketamine. CH is not lethal, only suicide is a risk.

Posted Nov 7, 2018 by MC 2500
I don't know the answer yet

Posted May 16, 2019 by vasilis 2500
Overdosing and addiction can affect quality and longevity of life. I don't believe life expectancy is directly affected by clusters. They aren't associated with any long term damage as far as I know and what my doctors/specialists have discussed with me. But self-harm is a big concern.

Posted May 20, 2019 by Kendra 4550
Life expectancy is not directly affected by CH. However life expectancy can be affected by things we do to manage the pain of CH like self- medication through alcohol or drugs, self-mutilation, or suicide.

Posted Aug 22, 2019 by Judy 1600
Clusters are not life threatening, but they have been dubbed "suicide headaches" for good reason.

Posted Apr 13, 2020 by Larry 5050
The diagnosis of cluster headaches doesn't change your life expectancy in the primary condition.

Posted Jul 27, 2020 by Stėph 3000
Life expectancy of primary cause cluster headaches is the same as any other non cluster person.

Posted Jul 27, 2020 by Stephanie 4650
Translated from spanish Improve translation
My doctor tells me that it can't I would die with the passage of time the crisis began to subside

Posted May 9, 2017 by Nélida 1001
Translated from spanish Improve translation
No. Is. Dies. Step. When. Disappear. A. Advanced age. But. E. Read. That. There are. Cases. That. Disappear. Within A few years of startup. Of the disease. But in a. Very low. Percent of cases

Posted Sep 17, 2017 by alex 900

Cluster Headaches life expectancy

Celebrities with Cluster Headaches

Celebrities with Cluster Headaches

9 answers
Is Cluster Headaches contagious?

Is Cluster Headaches contagious?

17 answers
Is Cluster Headaches hereditary?

Is Cluster Headaches hereditary?

17 answers
ICD9 and ICD10 codes of Cluster Headaches

ICD10 code of Cluster Headaches and ICD9 code

15 answers
Natural treatment of Cluster Headaches

Is there any natural treatment for Cluster Headaches?

17 answers
Living with Cluster Headaches

Living with Cluster Headaches. How to live with Cluster Headaches?

21 answers
Cluster Headaches diet

Cluster Headaches diet. Is there a diet which improves the quality of life ...

26 answers
History of Cluster Headaches

What is the history of Cluster Headaches?

15 answers

World map of Cluster Headaches

Find people with Cluster Headaches through the map. Connect with them and share experiences. Join the Cluster Headaches community.

Stories of Cluster Headaches

Cluster Headaches stories
My story can be read at http://www.lifewithclusterheadaches.com or http://www.levenmetclusterhoofdpijn.be Thanks for visiting!
Cluster Headaches stories
first I thought I had really bad tooth ache, this sounds silly,but I had never experienced tooth ache and everyone who I spoke to said tooth ache is the worst pain in the world. Well 3 different dentists and 3 teeth extracted at my request ( I actua...
Cluster Headaches stories
Cluster headache patients' information (German) http://www.ck-wissen.de/ckwiki pf wishes! Friedrich
Cluster Headaches stories
Chronic Cluster headaches  suffered 12 years   
Cluster Headaches stories
I have had bad headaches and migraines for years. Maxalt helped to a point.  Last July (2015) I was diagnosed with Primary Progressive Multiple Sclerosis.  Initially the pain I was experiencing was thought to be MS related.  Then my Neurologist di...

Tell your story and help others

Tell my story

Cluster Headaches forum

Cluster Headaches forum
There are registered many possible treatments for the Cluster Headaches, I ve listed some of them but I wold like to ask you to explain  a little bit which of the has gone better... Oxygen Treatment Dihydroergotamine Calcium channel blockers&...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map