- Coats Disease
- Interviews
Ana's interview
How did all start?
It started with a glow in Noa’s right eye
Do you already have a diagnosis? How long did it take you to get it?
We have diagnosis, it took us 6 months to get ophtalmologist examination
For what medical specialties have you been treated? What has been the most useful specialty for your?
None
What has been the most useful thing for you so far?
Going in Switzerland in Jules Gonin Opht. Hospital to dr. Munier and his team
What have been your biggest difficulties?
It was hard when we found out that Noa’s eye couldn’t be saved and he have to go on enucleation
How has your social and family environment reacted? Have your social or family relationships changed?
It is hard for everyone, family, friends…
What things have you stopped doing?
Pretty much nothing changed
What do you think about the future?
I am hoping that Noa will grow up like every other kid
So far, which years have been the best years in your life? What have you done during them?
Years with my kids are the best years
What would you like to do if you didn’t have your condition?
It is my sons condition, its hard to tell in his name and he is too small to know
If you had to describe your life in a sentence, what would it be?
Life is hard, fight harder
Finally, what advice would you give to a person in a similar situation?
There is no time for crying, just fight!