Mandibular Distraction at 3 months old
Not easy for the parents to understand what is going on with their kids until you have the diagnosis. After, it help to understand.
My family loves me so much!
Receiving the genetic diagnosis
Insisting on oral feeding opportunities without the NG tube in
physiotherapie, occupationnal therapy, speech therapy.
Having a supportive therapeutic team
Keeping our daughter home during the winter months
Having a very supportive family.
Having faith in God’s Will