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What is the prevalence of Colloid cyst?

How many people does Colloid cyst affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Colloid cyst

Colloid cyst is a rare type of brain tumor that typically occurs in the third ventricle, a fluid-filled cavity in the brain. It is estimated that the prevalence of colloid cysts is approximately 1 in 10,000 individuals. These cysts are usually small in size, measuring less than 2 centimeters, and are often found incidentally during brain imaging scans. Although they are generally benign, colloid cysts can cause symptoms by obstructing the flow of cerebrospinal fluid, leading to increased pressure in the brain. Prompt diagnosis and appropriate management are crucial to prevent complications.



Colloid cyst is a relatively rare condition characterized by the presence of a small, gelatinous growth within the brain's ventricular system. These cysts are typically found in the third ventricle, a fluid-filled cavity in the brain. Although they are considered benign, colloid cysts can cause significant health issues due to their potential to obstruct the flow of cerebrospinal fluid (CSF) and increase intracranial pressure.


While the exact prevalence of colloid cysts is not well-established, they are generally considered to be uncommon. Studies suggest that colloid cysts account for approximately 0.5-2% of all brain tumors. They are more commonly found in adults, with a peak incidence in the fourth and fifth decades of life. However, colloid cysts can also occur in children and older individuals.


Colloid cysts are often discovered incidentally during brain imaging scans performed for unrelated reasons. However, they can also present with symptoms such as headaches, hydrocephalus (excessive accumulation of CSF), and neurological deficits. Prompt diagnosis and appropriate management, which may involve surgical removal of the cyst, are crucial to prevent complications and ensure favorable outcomes.


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4 answers
It is vary rare 1 in 3 million I think

Posted Aug 14, 2017 by Jane Mcneill 2100
Colloid cysts account for approximately 2% of primary brain tumors, and the majority of cases are identified in the fourth and fifth decade. Eighty percent of the patients with colloid cyst reported in the literature are aged 30-60 years. Approximately 15-20% of all intraventricular masses are colloid cysts. Colloid cysts develop in the rostral aspect of the third ventricle in the foramen of Monro in 99% of cases, and despite their benign histology, they may carry high risks and neurologic complications, with a mortality reported from 3.1% to 10% in symptomatic cases or 1.2% in total.

Posted Aug 14, 2017 by Julia 2733
This is unknown, since only those with symptoms come to clinic, and many die without knowing. I have read that it affects more men, and that those with congenital forms are more likely to present at age 40-70 years.

Posted Oct 13, 2019 by dgustafs 2550

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Stories of Colloid cyst

COLLOID CYST STORIES
Colloid cyst stories
April 2014 I went to my PCP because I was tired all the time.  A previous sleep study said I had sleep apnea but I never had my septum repaired as I was instructed to do.  So he sent me to an ENT to finally have this done.  At the same time I aske...
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My journey began way back in 1986, I had just had a baby and then I began having monster headaches that would knock me off of my feet.  I had two children under the age of 3 and didn't have time to stop for very long.  My headaches subsided after a...
Colloid cyst stories
Diagnosed with a 4 mm Colloid Cyst in June, 2015. In January of 2015 began having severe headaches, confusion, memory problems, mood changes and passing out which eventually brought me to the point of being brought to the ER at which time they did a ...
Colloid cyst stories
I was diagnosed in 2013 with a 8mm colloid cyct due to a ER visit with symptoms of lost memory,vision disturbed,and massive migraine. I'm in wait and watch. It has grown to 9mm, 1 more mm and it will have to be removed via brain surgery. I have numer...
Colloid cyst stories
Diagnosed 2006 with emergency craniotomy 1 week later. Re-growth found in 2009. Yearly MRIs with 'watch & wait' approach. No symptoms at present (in 2016).

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