There are 128 people in the Congenital Sucrase Isomaltase Deficiency map

Congenital Sucrase Isomaltase Deficiency life expectancy

What is the life expectancy of someone with Congenital Sucrase Isomalt...

1 answer
Celebrities with Congenital Sucrase Isomaltase Deficiency

Celebrities with Congenital Sucrase Isomaltase Deficiency

Is Congenital Sucrase Isomaltase Deficiency contagious?

Is Congenital Sucrase Isomaltase Deficiency contagious?

1 answer
Is Congenital Sucrase Isomaltase Deficiency hereditary?

Is Congenital Sucrase Isomaltase Deficiency hereditary?

1 answer

Stories of Congenital Sucrase Isomaltase Deficiency

STORY
Congenital Sucrase Isomaltase Deficiency stories
Diagnosed at age 6 in Melbourne. No known family history of disease. No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.  
Congenital Sucrase Isomaltase Deficiency stories
My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.  As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.  As a mother, I will always be a voice for my young...
Congenital Sucrase Isomaltase Deficiency stories
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...

Tell your story and help others

Tell my story

View more

Congenital Sucrase Isomaltase Deficiency forum

QUESTION
Question 659
Hello, Just curious, do any of you struggle with UHT milk? I am fine with all other dairy but for some reason UHT is a no go for me. For the life of me I can't figure out why, there are no added sugars. I'm wondering if this is a 'CSID thin...

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Congenital Sucrase Isomaltase Deficiency

4 people with Congenital Sucrase Isomaltase Deficiency have taken the SF36 survey. Mean of Congenital Sucrase Isomaltase Deficiency is 1311 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Share

Congenital Sucrase Isomaltase Deficiency