My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.
As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.
As a mother, I will always be a voice for my young...
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...
Diagnosed at age 6 in Melbourne.
No known family history of disease.
No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.
1 people with Congenital Sucrase Isomaltase Deficiency have taken the SF36 survey. Mean of Congenital Sucrase Isomaltase Deficiency is 750 points (21 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey