Advice of Congenital Sucrase Isomaltase Deficiency

The support group on Facebook CSID caregivers and patients group. I'm no longer alone. After 30+ years of feeling exceptionally alone with CSID has immensely affected me being able to communicate, share and inevitably help others with CSID.

by DebKammerlander

Sucraid

by Hudson

Enzyme replacement therapy with Sucraid

by James

My daughter was diagnosed at 5.5 months. She's now 6 and thriving

by Claire

Two daughters, born in 2004 and 2010 both diagnosed with CSID

by Mieke

The csid group on facebook has helped me understand qhat we as a family are going through

by Natasha

El diagnóstico

by Adrián

Sucraid

by Aline/Olivia

Eliminate Sucrose from diet

by Tracy

Strict sucrose free diet

by Hayley

Sucraid

by Coralyn

Ser diagnosticada

by alondra

My 3 year old has gsid was diagnosed at 15 months old

by Samantha

Been diagnosed with Congenital Sucrase Isomaltase Deficiency has changed my life

by Sophie

Specialized diet

by Adej

Listening to my body

by Simone

Sucraid-1999 to the present! Best years of my life. First birthday cake in my life that I could eat was my 30th birthday!

by DebKammerlander

Family and friends support

by Hudson

Great support system

by James

We had never heard of Csid before we had our daughter.

by Claire

When my lil boy got put on invertase has made a huge difference would be lost without it

by Natasha

Grupo facebook: Dcsi, son un gran apoyo

by Adrián

Family support and love

by Aline/Olivia

Reduce milk and starch

by Tracy

Home made food - nearly everything

by Hayley

Tomar medicamentos

by alondra

Enzyme supplemtatio therapy

by Adej

Meal prepping and taking snacks everywhere

by Simone

Grapes (if I am eating grapes I am happy). An empty bathroom without a wait and expensive toilet paper.

by DebKammerlander

Manage diet

by Hudson

Invertase as an enzyme replacement has given us our daughter.

by Claire

Dieta correcta y segura

by Adrián

Dextrose/Fructose. Low carb goodies.

by Aline/Olivia

Drink water, be active, get sleep

by Tracy

Flexibility with starch intake on occasion

by Hayley

Asistir al médico

by alondra

Probiotics

by Adej

Research everything!

by Simone