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What are the latest advances in Congenital Sucrase Isomaltase Deficiency?

Here you can see the latest advances and discoveries made regarding Congenital Sucrase Isomaltase Deficiency.

Latest progress of Congenital Sucrase Isomaltase Deficiency
2 answers
There are no 'new' advances that I know of. The world is in a sugar epidemic.
Invertase/Sucraid are two know enzyme replacements that I am aware of.
'Kirkman' make a tablet called 'Carb Digest with Isogest' which I take when Invertase is not easily accessible, it is not a miracle cure but I think it helps a little.

Posted Mar 8, 2019 by Simone 3215
I do not keep up to date with latest advances as I have successfully managed CSID for over 40 years now

Posted Nov 15, 2021 by Tracey 3000

Latest progress of Congenital Sucrase Isomaltase Deficiency

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Is Congenital Sucrase Isomaltase Deficiency hereditary?

Is Congenital Sucrase Isomaltase Deficiency hereditary?

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World map of Congenital Sucrase Isomaltase Deficiency

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Stories of Congenital Sucrase Isomaltase Deficiency

CONGENITAL SUCRASE ISOMALTASE DEFICIENCY STORIES
Congenital Sucrase Isomaltase Deficiency stories
Diagnosed at age 6 in Melbourne. No known family history of disease. No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.  
Congenital Sucrase Isomaltase Deficiency stories
My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.  As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.  As a mother, I will always be a voice for my young son and...
Congenital Sucrase Isomaltase Deficiency stories
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...

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Congenital Sucrase Isomaltase Deficiency forum

CONGENITAL SUCRASE ISOMALTASE DEFICIENCY FORUM
Congenital Sucrase Isomaltase Deficiency forum
Hello, Just curious, do any of you struggle with UHT milk? I am fine with all other dairy but for some reason UHT is a no go for me. For the life of me I can't figure out why, there are no added sugars. I'm wondering if this is a 'CSID thin...

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