I am Dad to a CdC girl. Our daughter was born in 2012. She was diagnosed during pregnancy after the 20 week scan (and various scans/tests). We already had a son (born 2008) and have since had another boy in 2014.
The first year was the hardest for us. I'm not sure if things are easier or that we have adapted... but her health has certainly levelled out and we don't go to A&E as often or use Ambulances regularly!!
I am on the committee of the UK Support group charity http://www.criduchat.org.uk.