Stories of CRPS Complex Regional Pain Syndrome

CRPS Complex Regional Pain Syndrome stories
Life is full of choices. You can use your broken down car that barely putses along drive home. Or you can get out and try walking. Or you can try a bike. Well you can't do that with your body. So you drive or you don't.  But ultimately we ...
CRPS Complex Regional Pain Syndrome stories
I was diagnosed about 3 months ago after 2 long years of pain and confusion.It all started in Aug 2013 when the stool I was standing on to silence the smoke alarm flipped.I fell into a wooden door frame at the time I thought I had a badly sprained fo...
CRPS Complex Regional Pain Syndrome stories
In 1992 I was working for the USPS delivering mail in Vacaville, CA when a step to a mobile home collapsed and I fell onto the big toe of my right foot.  The people had been warned before, but had ignored the notices.  I immediately called ...
CRPS Complex Regional Pain Syndrome stories
Dear Loved One, Reflex Sympathetic Dystrophy also known as Complex Regional Pain Syndrome Type 1 is a rare chronic, painful, and progressive neurological condition that affects skin, muscles, joints, and bones that causes severe chronic pain, sympat...
CRPS Complex Regional Pain Syndrome stories
I have Rsd.crps 2. I went into a doctor for help with my trigeminal nuerlagia.  It had flared up that day. My normal doctor was not in. So I went to someone else to get a normal pain shot in the hip where they go. And the doctor and nurse stuck ...

Tell your story and help others

Tell my story

View more

CRPS Complex Regional Pain Syndrome forum

Question 225
Is anyone following some kind of natural treatment for CRPS? Is it working? Thanks!!
Question 142
Hello, which are the best treatments for CRPS? They could be medications (aspirin, ibuprofen, antidepressants, anticonvulsants, nerve-blocking medication) or therapies like heat and cold, guided exercisise… Thanks
Question 371
Good Morning,   I was wondering if anyone has had experience with Penn Pain Managemnet in Philadelphia?  I have had so amny other treatments including stellate ganglion blooks, lidocaine infusions (2x), ketamine infusion (won't do that agai...
Question 231
Anyone interested in coming along to the next APPG for CRPS?? This is will be London where you will be able to have your day talk to the mps already signed up and incurage your own to join us! We need to find a cure and to get and get help for everyo...

Ask a question and get answers from other users.

Ask a question

View more

Statistics of CRPS Complex Regional Pain Syndrome

67 people with CRPS Complex Regional Pain Syndrome have taken the SF36 survey. Mean of CRPS Complex Regional Pain Syndrome is 931 points (26 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

CRPS Complex Regional Pain Syndrome

Join the map