[email protected]'s interview
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How did all start?
An accident at work. A fall down thee stairs and grabbing onto handrail.
Do you already have a diagnosis? How long did it take you to get it?
Diagnosed in 2016
What has been the most useful thing for you so far?
Gabepentin Meditation Neuro tens machine Zopiclone Sertraline Nortritylene Bit E Vit C Bendro Clonadine Awaiting a Ketamine Infusion.
What have been your biggest difficulties?
Depression Pain flares People’s understanding of this disease Discrimination Finding a job Having studied for 3 years and not being placed in a practical workplace. The attitudes of lecturers - in passing me over. The stress that makes my pain flares constant Falling and breaking limbs< fingers , toes The inability of being unable to get out of bed because the pain is so severe. The dispair I feel at times.
How has your social and family environment reacted? Have your social or family relationships changed?
I experienced huge changes. Lost extended family. Explaining is not easy. Those that matter has remained and been my support
What things have you stopped doing?
Outdoor activities are curtailed - mountain hiking< swimming,doing my housework,Social interaction ,being in the workforce I ve stopped being co ordinated.
What do you think about the future?
Don't make plans too far ahead. Each day is a new beginning I get through.
So far, which years have been the best years in your life? What have you done during them?
All the years prior to th accident. I had my own company and building it up was a positive experience for me. I worked with special needs children , my passion was invested in families care and ,protection of children and intervention plans alongside families.
What would you like to do if you didn’t have your condition?
Travel the world , laugh and smile more than I do now < reach out and mediate for others in all avenueof life.
If you had to describe your life in a sentence, what would it be?
The journey is Challenging as I walk beside my daily pain
Finally, what advice would you give to a person in a similar situation?
Understand what your diagnosis is. Listen to your body. Don't push for more than you can give and don't set cpectations for yourself. Share your experiences and know that you are not alone.
