PORPHYRIE FORUM

INFORMATION PROVIDED BY AMBASSADORS

Information about Porphyrie provided by ambassadors of the condition.

GENERAL FORUM

General forum of Porphyrie

RESEARCH / NEWS

The lastest on Porphyrie research. Share your finds with others.

TREATMENTS

Drugs, supplements, therapies and treatments based on scientific studies.

NATURAL TREATMENTS

Treatments scientifically not proven.

SYMPTOMY

Porphyrie symptoms. Share your symptoms with others.

PORPHYRIE RESOURCES

Useful Porphyrie resources. Blogs, websites, support groups, apps...

SICK LEAVE / DISABILITIES

Sick leaves and disabilities. Goverment support.

PORPHYRIE COMMUNITY

SUPPORT

Get support from others. Ask for help and help others.

INTRODUCE YOURSELF

Introduce yourself. Tell us about you.

PŘÍBĚHY

Vyprávějte váš příběh a pomozte ostatním

PORPHYRIE CUTANEA TARDA FORUM

GENERAL FORUM

General forum of Porphyrie cutanea tarda

AKUTNÍ INTERMITENTNÍ PORFYRIE FORUM

GENERAL FORUM

General forum of Akutní intermitentní porfyrie

PORPHYRIE VARIEGATA FORUM

GENERAL FORUM

General forum of Porphyrie variegata

ERYTHROPOIETIC PROTOPORPHYRIA FORUM

GENERAL FORUM

General forum of Erythropoietic protoporphyria

DĚDIČNÁ KOPROPORFYRIE FORUM

GENERAL FORUM

General forum of Dědičná koproporfyrie

VROZENÝ .. FORUM

GENERAL FORUM

General forum of Vrozený ..

X-SPOJENÁ DOMINANTNÍ PROTOPORFYRIE FORUM

GENERAL FORUM

General forum of X-spojená dominantní protoporfyrie

HARDEROPORPHYRIA FORUM

GENERAL FORUM

General forum of Harderoporphyria

AMINOLEVULÁT DEHYDRATASU NEDOSTATEK PROFYRIE FORUM

GENERAL FORUM

General forum of Aminolevulát dehydratasu nedostatek profyrie