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Cyclic vomiting syndrome prognosis

What is the prognosis if you have Cyclic vomiting syndrome? Quality of life, limitations and expectatios of someone with Cyclic vomiting syndrome.

Cyclic vomiting syndrome prognosis

Cyclic Vomiting Syndrome (CVS) is a rare disorder characterized by recurrent episodes of severe vomiting, often accompanied by nausea, abdominal pain, and other symptoms. The exact cause of CVS is unknown, but it is believed to be related to abnormal functioning of the central nervous system.



Prognosis:



The prognosis for individuals with CVS varies depending on several factors, including the frequency and severity of episodes, the age of onset, and the presence of any underlying conditions. While CVS can be a chronic condition, it tends to improve with age in many cases.



Frequency and Severity:



The frequency and severity of CVS episodes can vary greatly among individuals. Some people may experience episodes only a few times a year, while others may have them multiple times a month. The duration of each episode can also vary, ranging from a few hours to several days. It is important to note that the severity of symptoms during episodes can be debilitating, leading to dehydration, weight loss, and disruption of daily activities.



Age of Onset:



The age at which CVS first presents can impact the prognosis. In many cases, CVS begins in childhood, with the average age of onset being around 5 years old. Children with CVS often outgrow the condition as they reach adolescence or adulthood. However, CVS can also develop in adulthood, and in these cases, the prognosis may be less favorable.



Underlying Conditions:



In some cases, CVS may be associated with underlying conditions such as migraines, mitochondrial disorders, or gastrointestinal disorders. When CVS is secondary to another condition, managing and treating the underlying condition may help improve the prognosis.



Treatment and Management:



While there is no cure for CVS, there are treatment options available to help manage the symptoms and reduce the frequency and severity of episodes. These may include lifestyle modifications, such as stress reduction techniques and dietary changes, as well as medications to control nausea and vomiting. It is important for individuals with CVS to work closely with their healthcare team to develop a personalized treatment plan.



Conclusion:



Cyclic Vomiting Syndrome is a complex disorder with a variable prognosis. While it can be a chronic condition, many individuals experience improvement over time, especially if the condition first presents in childhood. With proper management and support, individuals with CVS can lead fulfilling lives and minimize the impact of episodes on their overall well-being.


Diseasemaps
7 answers
The exact prognosis for cyclic vomiting syndrome is unknown and varies from patient to patient. At this stage, the oldest known person in our Facebook support groups is 65 years of age and was diagnosed at the age of 60. Generally the CVS warriors we have lost due to complications of CVS vary from the ages of 30-45 years of age.

Posted Jan 27, 2018 by Laura 3890
It varies from person to person. It can be chronic for months or years then disappear. People have had no episodes for ten or more years and then suddenly, it comes back. It's a condition that you just have to learn to live with as you will always have it. You just have to find what manages it for you. It's a bit of a crap shoot!

Posted Feb 19, 2018 by Rachel 4410
CVS is a chronic condition. Some children outgrow the vomiting episodes and their symptoms turn into traditional migraine symptoms. It at times can be worse or better. Medications, supplements, avoidance of triggers and behavioral therapy can also assist in getting better.

Posted May 29, 2019 by Nicci 3070
Life expectancy is normal as long as the symptoms are treated. It's a chronic condition.

Posted May 30, 2019 by Chloe 3120
It is chronic. It can change a lot during a life time. If you manage to find a working treatment for you, working medication, and learn about your triggers, it can be much better

Posted May 30, 2019 by Cassandra Katharina Minerva 4050
CVS is a Chronic Illness. Children can grow out of it but that's not always the case. Adults can go into remission but usually it will eventually return. CVS tends to get worse as the condition progresses through adulthood.

Posted Jul 12, 2021 by CVS Network - Angie 2875

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World map of Cyclic vomiting syndrome

Find people with Cyclic vomiting syndrome through the map. Connect with them and share experiences. Join the Cyclic vomiting syndrome community.

Stories of Cyclic vomiting syndrome

CYCLIC VOMITING SYNDROME STORIES
Cyclic vomiting syndrome stories
LIVING WITH CVS How would you feel if you suffered with attacks of... - Severe, constant, unrelenting nausea and vomiting. - Vomiting up to 12 times an hour for days or weeks at a time - Nauseas and/or retching/vomiting daily often violent & incred...
Cyclic vomiting syndrome stories
Hello, I just wanted to let you know there is a Facebook support group for Cyclic Vomiting Syndrome in New Zealand. You are welcome to join us all: https://www.facebook.com/groups/CVSNZ/  
Cyclic vomiting syndrome stories
I can remember getting headaches most of my life but nothing could prepare me for severe migraines, Abdominal migraines, fatigue, body pain, vomiting, constant daily nausea, daily aches and pains, horrible irritable bowel syndrome, and other sympto...
Cyclic vomiting syndrome stories
Hi,I am Roxi ,I was born with CVS> as  a new born baby I puked. The drs. all thought itwas formula, or vitamins. But Iwould vomit for a day and it would be done. It carried on into my childhood years.I was always in trouble for vomiting, my mother t...

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Cyclic vomiting syndrome forum

CYCLIC VOMITING SYNDROME FORUM
Cyclic vomiting syndrome forum
At CVS Network we aim to raise awareness of cvs, provide information and support sufferers and caregivers. We can also be found on Facebook. Use the links below to visit our various social media sites. Visit our CVS network website   Visit our C...

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