Stories of Cystic Fibrosis

Cystic Fibrosis stories
My son was born in 2011, happy and seemingly healthy. He had had his routine screeners when he was two days old in the hospital and nothing was picked up as being abnormal. It wasn't until my husband and I decided to donate our three embryos being st...
Cystic Fibrosis stories
Unfortunately I am on here marking 2 diseases on the map one for my mother who suffers from Corticobasal Degeneration (CBD) and another for my 12 (almost 13) year old niece who has Cystic Fibrosis. My family have been through so much we lost dad...
Cystic Fibrosis stories
Mia - aged 4 Jack aged 1 - Jack was affected badly from birth and has liver disease already. Mia was subsquently diagnosed but no symptoms so far. Concerned as there seems very little research into the alpha 1 condition   Jack also has cystic ...
Cystic Fibrosis stories
I was diagnosed with Cystic Fibrosis a few weeks after my birth, my mum was devastated she had no idea what this terrible illness was. They told her that I probably wouldn't reach adult hood and would not be able to do the same things as my peers.&nb...
Cystic Fibrosis stories
Misdiagnosed for many years. Diagnosed at age 50. Am now in the 54-60 age range.

Tell your story and help others

Tell my story

View more

Cystic Fibrosis forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Cystic Fibrosis

25 people with Cystic Fibrosis have taken the SF36 survey. Mean of Cystic Fibrosis is 1820 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Cystic Fibrosis

Join the map