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Living with Cystic Fibrosis. How to live with Cystic Fibrosis?

Can you be happy living with Cystic Fibrosis? What do you have to do to be happy with Cystic Fibrosis? Living with Cystic Fibrosis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Cystic Fibrosis

Living with Cystic Fibrosis

Living with Cystic Fibrosis


Cystic Fibrosis (CF) is a chronic genetic disease that affects the lungs and digestive system. While living with CF can present challenges, there are various strategies and lifestyle choices that can help individuals manage their condition and lead fulfilling lives.



Medical Management


Proper medical management is crucial for individuals with CF. This typically involves working closely with a specialized CF care team, which may include pulmonologists, dietitians, respiratory therapists, and social workers. Regular check-ups, monitoring lung function, and adhering to prescribed medications are essential.



Physical Activity


Engaging in regular physical activity is highly beneficial for individuals with CF. Exercise helps improve lung function, strengthens muscles, and enhances overall fitness. Consult with your healthcare team to develop an appropriate exercise plan tailored to your abilities and limitations.



Nutrition and Diet


A well-balanced and nutritious diet is vital for individuals with CF. Due to difficulties in absorbing nutrients, it is important to consume adequate calories and healthy fats. Working with a registered dietitian who specializes in CF can help create a personalized meal plan that meets your specific needs.



Pulmonary Care


Maintaining optimal lung health is a primary focus for individuals with CF. This involves daily airway clearance techniques, such as chest physiotherapy or using a vibrating vest, to help loosen and clear mucus from the lungs. Inhalation therapies, including bronchodilators and mucolytics, may also be prescribed to improve lung function.



Infection Prevention


Due to increased susceptibility to respiratory infections, practicing good hygiene and infection prevention measures is crucial. Regular handwashing, avoiding close contact with sick individuals, and staying up to date with recommended vaccinations can help reduce the risk of infections.



Emotional and Mental Well-being


Living with CF can be emotionally challenging, so it is important to prioritize emotional and mental well-being. Building a strong support network, seeking counseling or therapy, and participating in support groups can provide valuable emotional support. Engaging in activities that bring joy and practicing stress management techniques, such as mindfulness or meditation, can also contribute to overall well-being.



Education and Self-Advocacy


Education about CF and becoming an active participant in your own care is empowering. Stay informed about the latest research, treatment options, and advancements in CF management. Develop effective communication skills to advocate for your needs and collaborate with your healthcare team to make informed decisions about your care.



Social Life and Relationships


Having CF does not mean sacrificing a fulfilling social life or meaningful relationships. Openly communicating with friends, family, and romantic partners about your condition can foster understanding and support. While some precautions may be necessary, it is important to engage in social activities and maintain a sense of normalcy.



Planning for the Future


Living with CF requires long-term planning. Discussing future goals, such as education, career, and family planning, with your healthcare team can help navigate potential challenges and ensure appropriate support is in place.



Remember, every individual with CF is unique, and the management strategies may vary. It is essential to work closely with your healthcare team to develop a personalized plan that addresses your specific needs and goals.


Diseasemaps
11 answers
I believe CF doesn’t control me, I control CF. I choose what I want to do in my life, if I dream it I can do it. Be happy by not letting CF control your life, you are no different to anyone else. You get one shot at life with or without CF so make the most of it.

Posted Oct 2, 2017 by Andrew 1800
Be clean, be vigilant and compliant with medication and therapies. Do not be an idiot and miss medication or therapy because it can cost you. Living with CF is hard but not impossible.

Posted Jan 18, 2018 by Marieliz Landa 4060
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You can live very well with Fibrosis Cistica, strictly following the treatment. Remembering that the house fibrocistico is unique and its limitations tbm.

Posted May 27, 2017 by Maria Betânia 1170
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Live one day at a time , always doing the treatment and respecting its limits

Posted May 28, 2017 by Leonardo 1110
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Trust in Jehovah God that soon he will bring the New World where there was more disease and or death (Isaiah.33:24; Revelation.21:4) and have the support of family makes us, not be happy, but to conform.

Posted Aug 20, 2017 by Patty 1000
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Sure. We need to believe that tomorrow is a new day.

Posted Aug 20, 2017 by Cláudia 1100
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Yes it is possible to be happy , leads a normal life with medical care, special

Posted Sep 14, 2017 by Glauco 2000
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Treatment: nebulizacoes, fisioterapias respiratory medications

Posted Sep 27, 2017 by Kammily 1000
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If you can live with cystic fibrosis always have a positive mind and to cooperate in all

Posted Sep 27, 2017 by Hilda María Mex Tun 1100
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People with CF live happily like all the other people with rare diseases. Happiness increases the quality of life. The expectation increases with the help of families and friends giving us strength and holding our hands together we will win is the battle

Posted Sep 28, 2017 by Thais 1500

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