Help us to help more people
  2. Cystinuria
  3. Advice
Drink lots of fluids. Lots and lots of fluid. Makes a huge difference
by Simon
Drink at least 3-4 liters of water a day
by Trogie2
Others with the condition
by Clyazza
Drinking lots and lots of water
by Cindy Lu
11 years of pain
by Nmarshall
Penicillamine controlled my stone production until my teenage years.
by Jennifer
Putting fresh lemons in my drinks everyday in water or juice.
by Shelley
An excellent doctor with experience treating Cystinuria
by AlanG
More water
by MrsBoo
Drink at least 3 litres of water per day
by [email protected]
Thiola
by Jared
Thiola
by Cindy11!
Careful monitoring of my protein intake
by Kit
Finding support online
by Anna
Try to find a urologist or nephrologist who knows what this is!
by Simon
Water
by Trogie2
Water
by Clyazza
Being on Penicillimine and other medication
by Cindy Lu
Only diagnosed 4 years ago
by Nmarshall
I currently take Thiola, which has helped my stone production.
by Jennifer
Cutting salt/sodium out of my diet i.e. Crisps/chips are not to be eaten at all!! Animal proteins to be cut out also.
by Shelley
Drinking plenty of water
by AlanG
Understanding
by MrsBoo
Stick to 5 days vegetarian 2 days meat diet but low protein
by [email protected]
Water, all the water
by Jared
Water
by Cindy11!
Daily potassium carbonate
by Kit
Medication is gooooooooood
by Anna
I found the International Cystinuria Foundation support group on Facebook. They are amazing
by Simon
Water
by Trogie2
Family and friends
by Clyazza
Always being supported by family, friends and colleagues
by Cindy Lu
Drink loads!!!
by Nmarshall
Finding a good pain management group that worked with me on pain control has been important
by Jennifer
Drink, Drink, Drink!!!!
by Shelley
Hot jacuzzi when in pain.
by AlanG
A good consultant
by MrsBoo
Low methionine intake
by [email protected]
Limiting sodium
by Jared
Vegetarian
by Cindy11!
maintaining alkalinity in my urine
by Kit
Sleeping without having to set the alarm ^.^
by Anna