Stories of Dandy-Walker Syndrome

Dandy-Walker Syndrome stories
I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much informati...
Dandy-Walker Syndrome stories
I was pre-diagnosed when my mommy was 20 weeks pregnant, and MRI after birth confirmed my syndrome. I'm in lots of therapy and getting stronger everyday. 
Dandy-Walker Syndrome stories
Julian was born in 2010 and few weeks after his birth we found out he has Dandy Walker malformation - allegedly because of congenital infection with cytomegalovirus (CMV).   He has severe disabilities and is totally dependent on us - he can't ...
Dandy-Walker Syndrome stories
My son Sebastian was born in December 1994, in late summer 1995 he started having seizures. After a few EEG's and a brain mri they said he has Dandy Walker Malformation. He was a bit behind meeting his milestones and the doctors had told me not to wo...

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Statistics of Dandy-Walker Syndrome

1 people with Dandy-Walker Syndrome have taken the SF36 survey. Mean of Dandy-Walker Syndrome is 750 points (21 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Dandy-Walker Syndrome

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