Story about Dandy-Walker Syndrome .

Son Julian has Dandy Walker malformation

Jul 29, 2016

By: Urška


Julian was born in 2010 and few weeks after his birth we found out he has Dandy Walker malformation - allegedly because of congenital infection with cytomegalovirus (CMV).

 

He has severe disabilities and is totally dependent on us - he can't hold his head up, sit or walk, his comunication is poor, very basic (nonverbal), we feed him through g-tube. He also has seizures.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Living with Dandy-Walker Syndrome

Living with Dandy-Walker Syndrome. How to live with Dandy-Walker Syndr...

What is Dandy-Walker Syndrome

What is Dandy-Walker Syndrome

Dandy-Walker Syndrome life expectancy

What is the life expectancy of someone with Dandy-Walker Syndrome?

Celebrities with Dandy-Walker Syndrome

Celebrities with Dandy-Walker Syndrome

Latest progress of Dandy-Walker Syndrome

What are the latest advances in Dandy-Walker Syndrome?

Dandy-Walker Syndrome causes

Which are the causes of Dandy-Walker Syndrome?

Dandy-Walker Syndrome sports

Is it advisable to do exercise when affected by Dandy-Walker Syndrome?...

History of Dandy-Walker Syndrome

What is the history of Dandy-Walker Syndrome?