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How do I know if I have Dandy-Walker Syndrome?

What signs or symptoms may make you suspect you may have Dandy-Walker Syndrome. People who have experience in Dandy-Walker Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Dandy-Walker Syndrome?

Dandy-Walker Syndrome is a rare congenital brain malformation that affects the cerebellum, which is responsible for coordinating movement and maintaining balance. It is important to note that I am not a medical professional, but I can provide you with some general information.



Symptoms: The symptoms of Dandy-Walker Syndrome can vary from person to person. Some common signs include:




  • Enlarged Posterior Fossa: This is a key characteristic of Dandy-Walker Syndrome, where the space at the back of the brain is larger than normal.

  • Developmental Delays: Infants with this condition may experience delays in reaching developmental milestones such as sitting, crawling, or walking.

  • Problems with Coordination: Difficulties with balance, coordination, and fine motor skills may be present.

  • Hydrocephalus: Some individuals with Dandy-Walker Syndrome may develop an accumulation of fluid in the brain, leading to increased pressure.

  • Intellectual Disability: In some cases, individuals may have intellectual disabilities or learning difficulties.

  • Other Possible Symptoms: These can include seizures, problems with vision or hearing, muscle stiffness, and difficulties with speech and language.



Diagnosis: If you suspect you or someone you know may have Dandy-Walker Syndrome, it is crucial to consult with a healthcare professional. Diagnosis typically involves a combination of medical history evaluation, physical examination, and imaging tests such as magnetic resonance imaging (MRI) or computed tomography (CT) scans.



Treatment: There is no cure for Dandy-Walker Syndrome, but treatment focuses on managing the symptoms and associated conditions. This may involve surgical interventions to address hydrocephalus or physical, occupational, and speech therapy to improve motor skills and communication abilities.



Conclusion: Dandy-Walker Syndrome is a complex condition that requires medical expertise for proper diagnosis and management. If you suspect you or someone you know may have this syndrome, it is essential to seek professional medical advice for an accurate evaluation and appropriate guidance.


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I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much informati...
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I was pre-diagnosed when my mommy was 20 weeks pregnant, and MRI after birth confirmed my syndrome. I'm in lots of therapy and getting stronger everyday. 
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Julian was born in 2010 and few weeks after his birth we found out he has Dandy Walker malformation - allegedly because of congenital infection with cytomegalovirus (CMV).   He has severe disabilities and is totally dependent on us - he can't hold...
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My son Sebastian was born in December 1994, in late summer 1995 he started having seizures. After a few EEG's and a brain mri they said he has Dandy Walker Malformation. He was a bit behind meeting his milestones and the doctors had told me not to wo...

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