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How do I know if I have Dandy-Walker Syndrome?

What signs or symptoms may make you suspect you may have Dandy-Walker Syndrome. People who have experience in Dandy-Walker Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Dandy-Walker Syndrome?
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Do I have Dandy-Walker Syndrome?

Dandy-Walker Syndrome life expectancy

What is the life expectancy of someone with Dandy-Walker Syndrome?

1 answer
Is Dandy-Walker Syndrome contagious?

Is Dandy-Walker Syndrome contagious?

1 answer
ICD9 and ICD10 codes of Dandy-Walker Syndrome

ICD10 code of Dandy-Walker Syndrome and ICD9 code

Is Dandy-Walker Syndrome hereditary?

Is Dandy-Walker Syndrome hereditary?

Natural treatment of Dandy-Walker Syndrome

Is there any natural treatment for Dandy-Walker Syndrome?

Living with Dandy-Walker Syndrome

Living with Dandy-Walker Syndrome. How to live with Dandy-Walker Syndrome?

1 answer
Dandy-Walker Syndrome symptoms

Which are the symptoms of Dandy-Walker Syndrome?

1 answer
Dandy-Walker Syndrome jobs

Can people with Dandy-Walker Syndrome work? What kind of work can they perf...

1 answer

World map of Dandy-Walker Syndrome

Find people with Dandy-Walker Syndrome through the map. Connect with them and share experiences. Join the Dandy-Walker Syndrome community.

Stories of Dandy-Walker Syndrome

DANDY-WALKER SYNDROME STORIES
Dandy-Walker Syndrome stories
I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much informati...
Dandy-Walker Syndrome stories
I was pre-diagnosed when my mommy was 20 weeks pregnant, and MRI after birth confirmed my syndrome. I'm in lots of therapy and getting stronger everyday. 
Dandy-Walker Syndrome stories
Julian was born in 2010 and few weeks after his birth we found out he has Dandy Walker malformation - allegedly because of congenital infection with cytomegalovirus (CMV).   He has severe disabilities and is totally dependent on us - he can't hold...
Dandy-Walker Syndrome stories
My son Sebastian was born in December 1994, in late summer 1995 he started having seizures. After a few EEG's and a brain mri they said he has Dandy Walker Malformation. He was a bit behind meeting his milestones and the doctors had told me not to wo...

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Dandy-Walker Syndrome forum

DANDY-WALKER SYNDROME FORUM

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Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map