Can people with Dejerine Sottas Disease work? What kind of work can they perform?

Dejerine-Sottas disease, also known as hereditary motor and sensory neuropathy type III (HMSN III), is a rare genetic disorder that affects the peripheral nerves. It is characterized by progressive muscle weakness, sensory loss, and muscle wasting. The symptoms usually appear in early childhood and worsen over time.

Given the progressive nature of Dejerine-Sottas disease, individuals with this condition may face challenges in performing certain types of work. The severity of symptoms can vary from person to person, so the ability to work will depend on the individual's specific circumstances and the progression of the disease.

While some individuals with Dejerine-Sottas disease may experience significant limitations in their physical abilities, others may be able to engage in certain types of work with appropriate accommodations. It is important for individuals with this condition to consult with healthcare professionals and vocational rehabilitation specialists to determine the most suitable work options.

Here are some potential work options for individuals with Dejerine-Sottas disease:

1. Desk-based or office jobs: Individuals with Dejerine-Sottas disease who have limited mobility or physical strength may find desk-based or office jobs suitable. These can include administrative roles, data entry, customer service, writing, editing, or other tasks that primarily involve working with computers and communication.



2. Remote or freelance work: With the increasing availability of remote work opportunities, individuals with Dejerine-Sottas disease can explore freelance or remote work options. This allows for flexibility in managing symptoms and reduces the need for physical commuting.



3. Consulting or advisory roles: Individuals who have acquired specialized knowledge or expertise in a particular field can consider working as consultants or advisors. This can involve providing guidance, advice, or expertise to organizations or individuals in need of their specific skills.



4. Entrepreneurship: Some individuals with Dejerine-Sottas disease may choose to start their own businesses or pursue self-employment. This can provide flexibility in managing symptoms and allow for customization of work tasks and schedules.



5. Advocacy and support roles: Individuals with Dejerine-Sottas disease may find fulfillment in working for organizations or initiatives that focus on disability rights, advocacy, or support services. This can involve raising awareness, providing support to others with similar conditions, or working towards policy changes.

It is important to note that the ability to work and the specific job options will vary depending on the individual's unique circumstances, including the severity of symptoms, functional limitations, and personal preferences. Vocational rehabilitation specialists can provide guidance and support in identifying suitable work options and making necessary accommodations.

Overall, individuals with Dejerine-Sottas disease can pursue various types of work depending on their abilities, interests, and the accommodations available to them. It is crucial to prioritize their health and well-being while exploring suitable work options.