Lots of abdominal pain, it is flat and has finger like things on it reaching out and they believe it has ahold of my uterus. I'm on pain medication.

There are 32 people in the Desmoid Tumor map

Desmoid Tumor life expectancy

What is the life expectancy of someone with Desmoid Tumor?

Is Desmoid Tumor contagious?

Is Desmoid Tumor contagious?

1 answer
Is Desmoid Tumor hereditary?

Is Desmoid Tumor hereditary?

Celebrities with Desmoid Tumor

Celebrities with Desmoid Tumor


Abdominal pain, feeds off of estrogen.



Digestive system
Digestive system
Reproductive system
Reproductive system


  • pain


  • I'm on Tamoxifen, Megestrol orally and then a Zolodex injection every 3 months.
  • Specialist who treat it

    Colorectal surgery/Proctology Gastroenterology Oncology Palliative Medicine/ Care
    ICD9 and ICD10 codes of Desmoid Tumor

    ICD10 code of Desmoid Tumor and ICD9 code

    Natural treatment of Desmoid Tumor

    Is there any natural treatment for Desmoid Tumor?

    Living with Desmoid Tumor

    Living with Desmoid Tumor. How to live with Desmoid Tumor?

    1 answer
    Desmoid Tumor symptoms

    Which are the symptoms of Desmoid Tumor?

    1 answer

    Stories of Desmoid Tumor


    Tell your story and help others

    Tell my story

    View more

    Desmoid Tumor forum


    Ask a question and get answers from other users.

    Ask a question

    View more

    Statistics of Desmoid Tumor

    3 people with Desmoid Tumor have taken the SF36 survey. Mean of Desmoid Tumor is 2032 points (56 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

    View more

    Find your symptoms soulmates

    From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

    Symptoms soulmates

    Add your symptoms and discover your soulmates map

    Soulmates map