Lots of abdominal pain, it is flat and has finger like things on it reaching out and they believe it has ahold of my uterus. I'm on pain medication.

Abdominal pain, feeds off of estrogen.



Digestive system
Digestive system
Reproductive system
Reproductive system


  • pain


  • I'm on Tamoxifen, Megestrol orally and then a Zolodex injection every 3 months.
  • Specialist who treat it

    Colorectal surgery/Proctology Gastroenterology Oncology Palliative Medicine/ Care
    Desmoid Tumor symptoms

    Which are the worst symptoms of Desmoid Tumor?

    Desmoid Tumor treatments

    What are the best treatments for Desmoid Tumor?

    Desmoid Tumor life expectancy

    What is the life expectancy of someone with Desmoid Tumor?

    Latest progress of Desmoid Tumor

    What are the latest advances in Desmoid Tumor?

    Stories of Desmoid Tumor


    Tell your story and help others

    Tell my story

    View more

    Desmoid Tumor forum


    Ask a question and get answers from other users.

    Ask a question

    View more

    Statistics of Desmoid Tumor

    3 people with Desmoid Tumor have taken the SF36 survey. Mean of Desmoid Tumor is 2032 points (56 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

    View more

    Find your symptoms soulmates

    From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

    Symptoms soulmates

    Add your symptoms and discover your soulmates map

    Soulmates map