9

What is the life expectancy of someone with Desmoid Tumor?

Life expectancy of people with Desmoid Tumor and recent progresses and researches in Desmoid Tumor

Desmoid Tumor life expectancy

Desmoid tumor is a rare, locally aggressive tumor that arises from connective tissue. The life expectancy of individuals with desmoid tumors can vary widely depending on various factors such as tumor location, size, and response to treatment. It is important to note that desmoid tumors are generally considered non-metastatic, meaning they do not spread to distant organs. However, they can invade nearby structures and cause complications. Treatment options include surgery, radiation therapy, and medical therapy. With appropriate management, many individuals with desmoid tumors can live a normal lifespan. However, it is crucial for patients to receive regular follow-up care and discuss their specific prognosis with their healthcare team.




Desmoid tumors are rare, noncancerous growths that develop in the connective tissues of the body. Also known as aggressive fibromatosis, these tumors can occur in various parts of the body, including the abdominal wall, extremities, and trunk. Desmoid tumors are characterized by their locally invasive nature, meaning they can infiltrate nearby tissues and organs, but they do not metastasize or spread to distant sites.



Due to the unpredictable behavior of desmoid tumors, it is challenging to determine a precise life expectancy for individuals affected by this condition. The course of the disease can vary significantly from person to person, making it difficult to provide a definitive prognosis. The growth rate, location, size, and aggressiveness of the tumor, as well as the individual's overall health and response to treatment, all play a role in determining the outcome.



Treatment options for desmoid tumors are diverse and depend on several factors. In some cases, a watch-and-wait approach may be adopted, especially for small, slow-growing tumors that are not causing significant symptoms or impairing organ function. Regular monitoring through imaging techniques such as MRI or CT scans is essential to assess tumor progression.



When treatment is necessary, it typically involves a multidisciplinary approach, including surgery, radiation therapy, and medical interventions. The choice of treatment depends on the tumor's location, size, and growth pattern, as well as the individual's overall health and preferences. Surgery aims to remove the tumor while preserving organ function, but complete resection may not always be possible due to the tumor's infiltrative nature. Radiation therapy may be used to shrink the tumor or prevent recurrence after surgery. Additionally, medical interventions such as hormonal therapy, nonsteroidal anti-inflammatory drugs (NSAIDs), or targeted therapies may be considered.



Prognosis for desmoid tumors is highly variable. Some individuals experience slow-growing tumors that remain stable for long periods, while others may face more aggressive tumors that grow rapidly and invade nearby structures. Recurrence is also a possibility, even after successful treatment. The unpredictable nature of desmoid tumors makes it challenging to provide a definitive prognosis or life expectancy.



It is important for individuals diagnosed with desmoid tumors to work closely with a medical team experienced in managing this condition. Regular follow-up appointments, imaging studies, and ongoing evaluation are crucial to monitor tumor progression and adjust treatment plans accordingly. Additionally, support from healthcare professionals, family, and friends can play a significant role in managing the physical and emotional challenges associated with desmoid tumors.


Diseasemaps
1 answer

Desmoid Tumor life expectancy

Celebrities with Desmoid Tumor

Celebrities with Desmoid Tumor

1 answer
Is Desmoid Tumor hereditary?

Is Desmoid Tumor hereditary?

2 answers
Is Desmoid Tumor contagious?

Is Desmoid Tumor contagious?

3 answers
Natural treatment of Desmoid Tumor

Is there any natural treatment for Desmoid Tumor?

1 answer
ICD9 and ICD10 codes of Desmoid Tumor

ICD10 code of Desmoid Tumor and ICD9 code

2 answers
Living with Desmoid Tumor

Living with Desmoid Tumor. How to live with Desmoid Tumor?

2 answers
Desmoid Tumor diet

Desmoid Tumor diet. Is there a diet which improves the quality of life of p...

1 answer
History of Desmoid Tumor

What is the history of Desmoid Tumor?

1 answer

World map of Desmoid Tumor

Find people with Desmoid Tumor through the map. Connect with them and share experiences. Join the Desmoid Tumor community.

Stories of Desmoid Tumor

DESMOID TUMOR STORIES
Desmoid Tumor stories
Desmoid Tumor stories
After I had my youngest child in 2015 I noticed I wasn't healing properly. I was 27 and had 2 kids previously so I knew something wasn't right. I got an ultrasound and they found a small mass in my abdominal area near the ribs under my breast. They ...
Desmoid Tumor stories
Feb 2018: I woke up with a very sore right upper leg after lying on a hard sofa. Since then I'm only able to sleep on my back. June 2018: I started noticing an annoying sting after working out on the treadmill for half an hour. Since then I can only...

Tell your story and help others

Tell my story

Desmoid Tumor forum

DESMOID TUMOR FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map