There are 204 people in the 22q11 DiGeorge Syndrome map

22q11 DiGeorge Syndrome life expectancy

What is the life expectancy of someone with 22q11 DiGeorge Syndrome?

4 answers
Celebrities with 22q11 DiGeorge Syndrome

Celebrities with 22q11 DiGeorge Syndrome

2 answers
Is 22q11 DiGeorge Syndrome hereditary?

Is 22q11 DiGeorge Syndrome hereditary?

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Is 22q11 DiGeorge Syndrome contagious?

Is 22q11 DiGeorge Syndrome contagious?

2 answers

Stories of 22q11 DiGeorge Syndrome

STORY
22q11 DiGeorge Syndrome stories
I was diagnosed at 1 year of age. 
22q11 DiGeorge Syndrome stories
I have 22q. I wasn't diagnoses till after my youngest was born, then found myself, middle son and youngest have digeorge syndrome.  More story to come 
22q11 DiGeorge Syndrome stories
While in the NICU I was diagnosed with DiGeorge Syndrome. I was five weeks old at the time of diagnosis. We are moving forward with all of my specialist appointments to determine the range of my syndrome. 
22q11 DiGeorge Syndrome stories
My daughter was diagnosed at 5 days old with digeorge. She is now 8 months old. We are still learning about her spectrum.
22q11 DiGeorge Syndrome stories
He has 22q deletion. Cleft Low calcium  Kidney stones Two strokes  Hydrocephalus  Feeding issues  Low muscle tone  Developmental delay  

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22q11 DiGeorge Syndrome forum

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Statistics of 22q11 DiGeorge Syndrome

8 people with 22q11 DiGeorge Syndrome have taken the SF36 survey. Mean of 22q11 DiGeorge Syndrome is 1821 points (51 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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22q11 DiGeorge Syndrome