Stories of 22q11 DiGeorge Syndrome

STORY
22q11 DiGeorge Syndrome stories
I was diagnosed at 1 year of age. 
22q11 DiGeorge Syndrome stories
He has 22q deletion. Cleft Low calcium  Kidney stones Two strokes  Hydrocephalus  Feeding issues  Low muscle tone  Developmental delay  
22q11 DiGeorge Syndrome stories
While in the NICU I was diagnosed with DiGeorge Syndrome. I was five weeks old at the time of diagnosis. We are moving forward with all of my specialist appointments to determine the range of my syndrome. 
22q11 DiGeorge Syndrome stories
I have 22q. I wasn't diagnoses till after my youngest was born, then found myself, middle son and youngest have digeorge syndrome.  More story to come 
22q11 DiGeorge Syndrome stories
My daughter was diagnosed at 5 days old with digeorge. She is now 8 months old. We are still learning about her spectrum.

Tell your story and help others

Tell my story

View more

22q11 DiGeorge Syndrome forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of 22q11 DiGeorge Syndrome

4 people with 22q11 DiGeorge Syndrome have taken the SF36 survey. Mean of 22q11 DiGeorge Syndrome is 2336 points (65 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

22q11 DiGeorge Syndrome

Join the map