Living With My Purple Monster

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Hi, My name is Lilly when I was three months old I had my first seizure. After that my family wanted to know what was going on. So they started asking questions. Eventually they got an answer that changed my life forever. I have Dravets Syndrome witch is a genetic seizure disorder. Life wasn't easy while i got adjusted to my new medications and new rules about what I can and can't do. I am now six years old and life couldn't be better. I live with my mom ,dad, sister , grandmother, and grandfather. I play outside everyday and have lots of things to do inside with lots of toys and love. I do have some behavior issues and I'm still taking new medicines to help me out. I am also getting ready for kindergarten and I just can't wait to make new friends. I will be starting in life skills classes and mom and grandma are taking me to therapy appts every week. I couldn't ask for anything better than what i have now. I will keep you updated. If you have any question Please email my Grandmother at [email protected] she will try to help you.