Story about Duane Syndrome .

Living with Duanes

Nov 15, 2017

By: Annie

Year Condition Began: 1962


I was born with this condition. I have had 2 surgeries that corrected and inward turned right eye and have always had a head tilt. Due to my childhood, I never knew there was a name for the condition. I found out when my granddaughter was diagnosed with the condition at about 1 1/2 years old.She believes she is a princess, and is unaware of her condition as it is milder than mine.
I have dealt with misconception and judgment about my intelligence since I was a small child. I have had to deal with people making fun of me because of my condition since I have been a child. It use to really hurt and sometimes people are just cruel. I Finally figured out the following. I cannot change my condition, just as those who make fun are unaware of their lack of emotional intelligence or IQ. As an adult I do very well. I am a writer and work with children. I have a wonderful family. I have great friends. I wear sunglasses, or glasses quite often. I wear my hair in a way that it helps to conceals my right eye. I can drive and do normal actives. I remain self=conscience and am sure people notice, Most do not ask. Occasionally, children are curious and will ask concerning my eye. I answer them and tell them about it. This seems to satisfy their curiosity and life goes on.
This is me. This is how I was made. Wonderfully and perfect in the sight of God, and who am I to argue that.
Story about Duane Syndrome

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